Got what I wanted (T3), now nervous to try it! - Thyroid UK

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Got what I wanted (T3), now nervous to try it!

Syd35 profile image
12 Replies

After a bit of hassle I ended up getting T3 which private endo suggested to try as wasn't feeling much better after levo dose increase.

On the one hand I am excited to try it but on the other bit worried it will make me feel worse / have no difference.

Guess I just need a kick up the proverbial and get on with it as there's only one way to find out...

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Syd35 profile image
Syd35
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12 Replies
Hay2016 profile image
Hay2016

Absolutely, I fought the fight this morning with nhs endo and got nowhere. So def try it as directed. Before I knew what was what, I was on 80 t3 before I had rai. I’d have stocked up if I knew then what I know now. 😭

Hubby thinks it’s in my head and t3 won’t make diff but would love to see.

You’ve got nothing to lose. 😀

Syd35 profile image
Syd35 in reply to Hay2016

Thanks Hay, I will come back and let you know how I get on :-)

Scazzoh profile image
Scazzoh

Try starting 'low and slow', by taking say, 5 mcg of T3 daily for a couple of weeks i.e. one table divided into four. You can get tablet cutters from Boots. Then increase by 5mcg every couple of weeks until your symptoms go. Synthetic hormones didn't work for me and I am now doing well on NDT. You won't find out if it works unless you try it.

Syd35 profile image
Syd35 in reply to Scazzoh

Thanks Scazzoh, so happens i have been given 5mcg pills so no hassle of cutting them up thankfully :-)

Scazzoh profile image
Scazzoh in reply to Syd35

What advice have you been given re: dosage?

Syd35 profile image
Syd35

Have been told to drop Levo down to 75mcg and take 5mcg T3 twice per day. Would that make sense?

shaws profile image
shawsAdministrator in reply to Syd35

Yes, that's the usual way Endocrinologists usually advise but remember your stomach has to be empty when you take tablets and wait about an hour before eating.

Personally, and I'm not medically qualified I would add one 5mcg to 75mcg levo and after a week or two would add the other 5mcg.

shaws profile image
shawsAdministrator

With T3 I have a pain-free symptom-free life. After all it is the only Active Thyroid Hormone, levo being inactive and has to convert to T3.

If you don't have an improvement and obviously give it a good trial at least you have tried. It cannot make you feel worse but sometimes the fillers/binders in the product (of any thyroid hormone replacement) may affect us. If it doesn't work, again you have tried.

Supul profile image
Supul

My friend recently started t3 she is amazingly better than before. Now endo has increased her dose, I can't keep up with her! Lol

Her brain health has improved too. No longer stopping and starting trying to remember words during conversation.

Honestly? It seems as though she has woken up! I'm well jealous!, ha ha... she wasn't improving with old endo treatment.

She changed to my endo as I said mine was really caring (I waited 25 years to see one, and had one appointment so far). She has seen him twice! And, definitely fairing better than me!

Go for it! Good luck! X

Syd35 profile image
Syd35 in reply to Supul

Thanks Supul that's great to hear about your friend guess it works for some of us ☺

serenfach profile image
serenfach

I know that feeling. It is like looking at a bomb! But well worth trying, so here is a virtual kick up the bum!

There was also a bit in my brain that told me that if it did not work, I was doomed! Then I realised I was doomed anyway and to just get on with it!

Right - go on, right now. Go on, get one, stop looking at it, just swallow. Phew! Welcome to feeling better! :)

Syd35 profile image
Syd35 in reply to serenfach

Haha thanks serenfach your reply made me smile. Going to give it a go and will report back :-)

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