New Labs/Symptoms- Yeara after TT:: Hey all, so... - Thyroid UK

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New Labs/Symptoms- Yeara after TT:

misscliocat profile image
2 Replies

Hey all, so I'm a few years out of my TT and still trying to find solace and help. I'm currently on a compounded amount of T4 of 143 and 5 mcg of T3.

After seven weeks, these were my labs:

TSH (0.4-4.5) current level is 0.94

FreeT4 (0.8-1.8) current level is 1.4

FreeT3 (2.3-4.2) current level is 2.1

Here's the thing, I've been all over and on 150 had a higher FT3 (not by much) but it was randomly much higher and now just dropping 7mcg, my FT3 is non-existent. My prolactin was a bit above range also, but waiting on that plan of tactic during the interim.

However, since lowering this amount I feel less wired in some ways and feel the need to sleep more but it's been confirmed that I don't go past stage two of sleep at all since my thyroiedromy. I've also been in bed until 1 pm almost every day and can not force myself out sooner because I can not force myself out of it. This is nice as a change but I'm looking more bloated and this extreme need for unrefreshing sleep is making me worried. I can't figure out if I'm hypo or hyper but I do feel more tired. Too high FT4, then less body aches but my brain feels wired... if that makes sense... and Cytomel really doesn't do much for me. I don't have the numbness and tingling like I had before but just would love opinions on what to do. This has been the hardest time post TT on which way to go and I am missing so much of my life. My doc suggested I go back to 150 and maybe split the dose into two to counteract the slump I get... but going on this dose longer, I stay up late but want to sleep all afternoon and it's truly running my life. I k is my adrenals are shot , naturally, so I'm working on that, but I just would appreciate on outsider's perspective on this. I know my FT3 is not even there but too high and I feel kinda manic... and the highest it's been was 3.5 by a total weird fluke on 150 T4... but should I raise my T4 a bit? Any thoughts? I keep seeing a lot of people post TT on lower doses and makes me wonder if I should go lower with mine? And did NDT but the T3/T4 ratio wasn't the best for me... not ruling it out but right now really feel like I'm getting warmer and trying to make this work.

My symptoms are unrefreshing sleep.. face bloat... mentally not as wired but still lethargic... butt muscle aches a bit... and a wonky tired feeling about 8 hours after my medicine has been infected... oh, and DRY skin, like it hurts. And still hair loss

Less numbness and tinkling and less anxiety are the trade offs...

Sorry if this is all over the place... just need those that have been through this and their thoughts... or what has worked for them, level wise.

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misscliocat
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SlowDragon profile image
SlowDragonAdministrator

if You took separate T4 and T3 you could increase the dose of T3. May be need to take as split dose, e.g. 5mcg on waking, 5mcg mid afternoon. Rested after 6-8 weeks. Possibly need further increase in T3 after that

Very important to have good vitamin D, folate, ferritin and B12 too

shaws profile image
shawsAdministrator

I have looked at your profile to read your history but there's no information and if you could copy and paste some of the above into your Profile it helps to read some background.

Blood test results are fine but it is how we, the patient 'feels' on a particular dose which is the best judge.

I am not medically qualified but would suggest your dose of T4/T3 be on a 3 to 1 basis. Your FT3 result is too low on the dose you take at present. Go to page 80 on the following link to read about the equivalence:-

tpauk.com/images/docs/reduc...

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