Thyroid UK
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This is worth a read!

scribd.com/document/3750595...

[ Edited by admin 22:10 29/03/2018:

14. If you post a link, please at least explain briefly what people can expect to find if they follow the link. Links without such an introduction/explanation may be deleted.

healthunlocked.com/thyroidu...

However interesting your link may appear to be to you, it is only sensible to tell people what they should expect to find if they follow your link. Without knowing that, many people will simply ignore it. Those who follow it and then find they are not interested will wonder why they wasted their time and bandwidth. ]

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Thank-you for posting this. I've only skimmed it but it seems that they don't actually propose to do anything, a lot of fence sitting. I could be completely mistaken. It is fantastic that these issues have been raised and are now officially on record. Those involved in this project have put in an incredible amount of work and I'm sure patients are very grateful for their efforts. Thank-you.

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It definitely requires reading and I have done a quick look through. There are the pros and cons of course but am glad Dr Midgely was able to put forth views that coincide with many of the members on this forum.

Many of the things we've heard/read before i.e. NDT being inconsistent etc.

Lyn Mynott, Lorraine Cleaver, Dr. Toft and Dr Midgeley made good points.

The fact that the 'other side' seem to ignore that quite a number of suffering patients need options and that we find doctors and even endocrinologists just say they cannot prescribe anything but levothyroxine. Many also say that there's nothing wrong with levothyroxine but are willing to prescribe other prescriptions for a symptom(s) but not ensuring that the patient's body can cope with synthetic levothyroxine.

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Sorry to say I felt utterly depressed after reading it and it seems to take the matter no further forward than previously. Dr Toft should have made a stronger statement, as per an email he sent to a member of this group, approving the use of T4/3. I also wrote to him recently and received a perfectly supportive response, so why the lukewarm comments on T3? And the BTF allowed statements they made in 2015 to be used but they changed their view a few months ago. Was I reading it differently to anyone else?

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I have to read it fully. The BTA don't seem to want to acknowledge that some people do not get well on levo (me included - in fact far worse than having a TSH of 100). I think the real problem is that they all believe we are suffering from a somatoform condition (because our TSH is in range)!

webmd.com/mental-health/som...

It seems to me that some of their very top Endocrinologists will not change their minds that levo alone is not perfect and make unpleasant comments about patients who don't improve. One I believe has now gone on to higher positions elsewhere. We were very pleased about that.

Dr Toft has changed his mind a few times but I don't know if you've read his latest comments which were posted on the forum and bombing out the methods used today by doctors/endos.

This report goes back to 2015 I believe and has probably taken a long time to put together so hopefully a lot of it is now out of date.

The Scottish MP Elaine Smith herself takes T3 and couldn't function without it.

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I’m sure it’s not a done deal yet. There will be a period of time where people will raise all the points that need re- addressed. Given the length of time that it has taken to get this far this report can only be a good thing surely?

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In the past we all signed a Petition to reinstate the T3 and not withdraw it. No action yet.

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Yeah, everything takes such a long time when you are hypo! We must keep the pressure up. Last week I wrote to 9 politicians re thyroid & adrenal issues including the PM! Lorraine Cleaver was on STV news last night so awareness is being kept to the fore front.

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Definitely worth a read, even though there are 50 pages. Hopefully this petition will make a difference elsewhere in the UK too. Well done Lorraine Cleaver and everyone else who made submissions for us sufferers.

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