High anti tpo normal tsh

[Pamela0430]

My TSH levels are 2.33 and my Anti tpo levels are 769. I have a painful lump in my right armpit and left is starting to swell. I have pain in my swollen neck and have bumps at the base of my face which also hurt....the side of my face is starting to swell . My energy level is low. Both elbows have a bump on the inside that is sensitive to the touch. Dr thinks I have fibromyalgia but that doesn't feel right. Symptoms started 8 months ago and getting progressively worse. I need help! Functioning daily is getting tough...any ideas on other possible issues?

[Pamela0430]

I meant my anti tpo levels are 769.

[Peanut31]

Hi Pamela0430

Have you got your full thyroid results? Including lab ranges.

This is what the experts will ask you on here as need more details to help.

Please ask your GP surgery for them, you are entitled to a copy.

If not either ask for a full thyroid blood test or pay private.

I think you meant high antibodies?, if antibodies present you may have Hashimoto’s (I have this) and can relate to your painful neck.

Are you on any medication for thyroid.

Best wishes

Peanut31

[Pamela0430 in reply to Peanut31]

I've attached my lab results. They're in French...

[SlowDragon Administrator]

First thing is, do you have any actual blood test results? if not will need to get hold of copies

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need enhanced access to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up. They can make nominal charge for printing but many will do so for free (£10 max and can not charge at all after May 2018)

Can you add most recent results and ranges for FT3 and FT4 if done

Also need vitamin D, folate, ferritin and B12 tested. Add results and ranges if you have them

Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's

Essential to test vitamin D, folate, ferritin and B12. Always get actual results and ranges. Post results when you have them, members can advise

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first and vitamins if not done.

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

[Pamela0430 in reply to SlowDragon]

I've attached my lab results...theyre in French...

[SlowDragon Administrator in reply to Pamela0430]

Sorry not readable

Can you type out results and ranges for

TSH, FT4 and FT3

Thyroid antibodies

Vitamin D, folate, ferritin and B12

[Pamela0430 in reply to SlowDragon]

Tsh result 2.33. Range mU/L .042-.063

Ft4 result 12 range pmol/L 10-19

Ft3 not tested

Anti-tpo result 769 range KUI/L 0-60

Other abnormals:

Red cells 3.85 range 10*12/L 4.20-5.40

TGMH 33.5 range pg 27.0-31.0

DVE 11.9 range %/CV 12.7-16.0

VPM 10.7 range fl 7.4-10.4

Folic acid 45.3 range nmol/L 7.0-39.6

B12 743 range pmol/L 156-672

GGT 107 range U/L 5-55

Bilirubin 18.0 range umol/L 3.0-17.0

Calcium 1.93 range mmol/L 2.12-2.52

Symptoms: neck swollen (no lumps) painful

Lumps at base of face. Painful

Lump right armpit. Painful

Swelling starting left armpit

Below collar bone sensitive to touch

Back cannot be rubbed..sensitive to touch in upper region

[SlowDragon Administrator in reply to Pamela0430]

So are you on Levothyroxine or diagnosed at all with thyroid problem?

Your high TPO antibodies confirms you have Hashimoto's. Though at the moment your TSH and FT4 are in range.but you can still feel terrible. FT4 is low in range

No vitamin D

Not sure about ferritin. I think some of these may mean you have low iron

greygoose may be able to help....living in France will be use to these abbreviations

Hashimoto's affects the gut and often leads to low stomach acid and then low vitamin levels

Low vitamin levels can affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first plus vitamin D test

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

[greygoose in reply to SlowDragon]

I've never had such an in-depth blood test! So, sorry, can't be of help.

But, Pamela, hasn't your doctor considered that these lumps might be lymph nodes, and taken the necessary steps?

[Pamela0430 in reply to greygoose]

I had a scan in January for my throat...shiw lymph nodes are swollen but no cancer. I do have a cist in my neck as well..but not cancerous. The eight showed swelling, no cancer but has grown and pain has increased since last test. I feel like my situation is getting worse and worse and there's no quick enoigh solution. 8 months in and my pain is incresi g every week...i feel lost

[greygoose in reply to Pamela0430]

What did the doctor suggest you do for your swollen lymph nodes?

[Pamela0430 in reply to greygoose]

Lyrica

[Pamela0430 in reply to greygoose]

I have filled the prescription. I feel like it's a bandaid and I want a solution

[greygoose in reply to Pamela0430]

Well, it is just a band aid, but it might help while he's doing more in-depth research. Did he suggest anything else?

[Pamela0430 in reply to greygoose]

Not yet. I'm seeing him on Monday...i threw out the idea of hashimoto's disease and he dismissed it

[greygoose in reply to Pamela0430]

Ask him what he knows about Hashi's. Bet he knows nothing! Has he even tested your antibodies?

[Pamela0430 in reply to greygoose]

He's tested my anti-tpo and t4 and tsh levels...but not my t3 levels yet.

I hope he listens to me. A different Dr out me on the lost for a referral for a ENT specialist. I'm going to see as many Dr as I can until someone gives me a clear answer.

[greygoose in reply to Pamela0430]

Oh yes, and this is the result?

Anti-tpo result 769 range KUI/L 0-60

It's over-range, so you do have Hashi's. He doesn't know what the hell he's talking about!

[Pamela0430 in reply to greygoose]

From what I read hashi's often comes with low b12 levels...mine are high..as are my ggt levels (liver enzymes)...my red cells are also just below normal....I don't know what to think...

[greygoose in reply to Pamela0430]

Yes, it often does come with low B12 levels. But, just because your B12 is high, doesn't mean you don't have Hashi's. It's the high antibodies that say you have Hashi's, and antibodies don't lie.

The high B12 possibly means that you have some other sort of problem, and your doctor should be investigating that, along with your ggt and red cell levels. You're not supposed to have to know what to think, that's his/her job. Makes sure s/he does it.

[Pamela0430 in reply to greygoose]

Yes I agree....and now I'm having heart palpitations! I don't know what the he'll is going on!!

[greygoose in reply to Pamela0430]

Palpitations can often be a symptom of under-medication, and you are under-medicated according to the results you posted above. You need an increase in dose. You're hypo, that's what's going on.

[Pamela0430 in reply to greygoose]

Well, I'm officially on sick leave now. Any energy exertion causes pain and brain fog. I'm not on any meds but have started taking calcium and vitamin d. My condition is deteriorating at a faster pace now. A bump has appeared on my upper chest wall...lump in armpit has become more painful and enlarged.

Waiting for a call from internal medicine now...

Pam

[greygoose in reply to Pamela0430]

Did the doctor prescribe calcium? I'm not sure that that's a good idea. Taking vit d will increase your absorption of calcium from food, and you should be taking vit K2 - MK7 with it, to make sure the calcium goes into the bones and teeth, and doesn't build up in the soft tissues, because it could cause kidney stones or a heart attack, if it does.

Do you actually live in France? Or just had some tests done whilst over there?

[Pamela0430 in reply to greygoose]

Yes my Dr prescribed it...and I'm in Canada in the province of Quebec

[greygoose in reply to Pamela0430]

Ah, ok! That explains why it's in French.

Well, the problem is, doctors don't really know much about nutrients. He probably doesn't know that taking vit d increases your absorption of calcium. So, you really should take some vit K2 with it - he won't know about that, either - and keep a close eye on your calcium levels. You should also take magnesium, if you're taking vit D, because the D will lower your magnesium levels.

[Pamela0430 in reply to greygoose]

Thanks for the advice... I'm anxious for this to be resolved. My quality of life has gone down the shitter.....

[greygoose in reply to Pamela0430]

Yes, I can imagine it has. I hope you get some help from Internal medicine.

[Pamela0430 in reply to greygoose]

Sorry.. I have NOT filled the prescription