LDN of hashi's: Hi there, I have just been... - Thyroid UK

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LDN of hashi's

Emmyelle profile image
9 Replies

Hi there,

I have just been prescribed LDN in the republic of Ireland, however, it is so darn expensive for a low dose. Does anyone know where to get it cheaper? I know some online pharmacies do it if you have a script. I can't afford the 130 per month. Thanks

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Emmyelle profile image
Emmyelle
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9 Replies
RobinAnn profile image
RobinAnn

By 50mg tablets. Add 50ml distilled water and store in fridge in a dark bottle. And use a syringe to dose it. This is how I've done it. I think the tablets are much cheaper then having it pre made by a compounding pharmacy.

Naomi8 profile image
Naomi8 in reply to RobinAnn

I tried to source the tablets,but the link supplied by a member didn't yield results.

Naomi8 profile image
Naomi8

Am pm'ing you my supplier

Welchy1 profile image
Welchy1 in reply to Naomi8

Hi Naomi8, has LDN worked well for you? I saw from earlier posts you've been taking for a couple of years at least. I'd love to know how and what symptoms it's improved (my hair quality with hashis is getting worse and worse).

Naomi8 profile image
Naomi8 in reply to Welchy1

I have been taking LDN for nearly 3 years,working up to 4mls very recently from an iinitial .5mls.I stayed on 3.5 for ages,as recommended by anecdotal evidence from STTM.

I started 2 years of T3 at the same time I started LDN & was GF for quite a while.I felt the best for a long time(had been on thyroxine for 16 years.)

Now I'm on NDT & have just raised to 3 grains,as well as raising LDN to 4mls.I am also being much more consistent with 2,000 B12,2,000 D3 with K,folate & iron with vit C.

Will get blood tests shortly & pay for antibodies test,as NHS have refused me that test several times(Had raised antibodies on diagnosis in 1997)

Have good days & bad.Stopped T3 only because my hair follicles shut down.Didn't shed alot of hair,just stopped growing new hair.

Aunds profile image
Aunds

I have a source pm me if you need it.

RobinAnn profile image
RobinAnn

If your doc gave you an RX for a compounding mix can he or she give you an rx for pure tablets. That's how I got mine.

Briella profile image
Briella

Hi, a lot of ppl in the U.S get their needs in Canada, i know they are far cheaper than here in U.S. i live near border,near niagara falls,many in my area do. Hope it helps!

Davidc555 profile image
Davidc555

Contact Dickson chemist here in Rutherglen Glasgow. Google their web site as they supply LDN worldwide. They should be able to help with Doctors who supply private prescriptions

This is common knowledge and not a secret so no need to pm me !

Best of luck

David

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