Thyroid UK

New member with T3 prescription problems on NHS

Hi there,

Joined this group as am having problems getting T3/Liothyronine presciptions on NHS. Have appointment at NHS trust hospital next month but was warned by my GP that there is a blanket ban on NHS T3 prescriptions. Needless to say am extremely worried and distressed as prior to going on T3 replacement I was almost non-functional. For the past 12 years my life has improved beyond recognition while on a combination of T3/T4 replacement medication. In the past 6 years I have completed studies, started and maintained a very interesting job and all of this from age 50 onwards. The thought of returning to the life I had in my 40s prior to being on T3 is terrifying. I am trying to explore where I can buy T3 replacement? I contacted Pharmacy4u who told me this morning they charge £387.30 for 28 tablets on a private prescription. This is completely out of my financial reach. Any suggestions/advice be very appreciated.

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Cheryl-Anne,

There isn't a blanket NHS ban on prescribing T3. Tell your GP that the CCG does not have the authority to tell GPs what not to prescribe and you believe your GP is in breach of GMS contract by withdrawing treatment you have been told you need. Say you have been well on Liothyronine and wish to continue taking it. Attach the BTA guidance for patients and GPs.

The BTA issued guidance that patients doing well on T3 should not have their prescriptions with-drawn. See FAQS for patients and GPs in british-thyroid-association...

CCGs do not have the authority to tell GPs what not to prescribe. Individual GPs, not CCGs, could be found in breach of the General Medical Services contract if they do not prescribe treatment patients have been told "they need".

bmj.com/content/358/bmj.j36...

The GPC has warned that GPs would be in breach of the GMS contract and could get into legal trouble by following the orders and refusing to prescribe patients treatments they have told them they need.

gponline.com/gpc-warning-ig...

CCGs are expected to do impact consultations with the public and stakeholders before implementing change. Failure to do so leaves them open to legal challenge so check whether your CCG did an impact consultation before advising your GP to withdraw T3.

mills-reeve.com/files/Publi...

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Also look on Improve Thyroid Treatment campaign on Facebook for lots of helpful letter templates and research links

BTA statement

british-thyroid-association...

Contact your MP, ideally in person, but by letter if face to face not possible. Perhaps CC Lord O'Shaughnessy too

theyworkforyou.com/wrans/?i...

In mean time put new post up requesting info from members on T3 available without prescription

Or a private prescription will enable purchase from France or Germany online at fraction of cost (£25-£30 for 100 tablets)

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Thank-you very much. I have just arrived home from work, feel tired so will read carefully in the morning. How does one order from France or Germany? I can afford the prices you have mentioned.

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