Levothyroxine seems to be working ! : Hi I... - Thyroid UK

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Levothyroxine seems to be working !

Troya18 profile image
9 Replies

Hi

I started levo treatment on 28 th Dec

My results were

28/12/17

TSH level - 5.34 ( 0.30-4.50)

TSH 4 - 13.9 (10.0- 22.0)

13/02/18

2.27

15.6

I can't tell if I'm fully better yet cos I've had a lot of stress but I have noticed I am less puffy in hands and feet and have lost a little weight despite no changes in diet (and have ate loads dues to stress ! )

The only bad thing I've had is spots again probably due to stress ! And plantar fasciitis has returned with avengance in my left heel the doc who gave me a steroid injection for this few years ago is on annual leave but hopefully can see him next week to assess whether can have the injection again.

I still have pretty achy ankle joints, little get up and go , weird aches n pains in feet but a little less tired ( not much ! )

Anyway I'm carrying on with 50 levo and I assume I have another test in 6 weeks to check ??! I only could get to see a higher level nurse today !

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Troya18
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9 Replies
Clutter profile image
Clutter

Troya18,

You are undermedicated and that will be why you are still achy and maybe why you have PF. Ask for a dose increase. The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.2 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email dionne.fulcher@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

Troya18 profile image
Troya18 in reply to Clutter

O won't the levels continue to fall on 50 ?

Clutter profile image
Clutter in reply to Troya18

Troya18,

Not if you've been taking 50mcg for 2 months it won't.

Troya18 profile image
Troya18 in reply to Clutter

Yeah I couldn't get to see the doctor who originally diagnosed me so will try get to see her Friday - the nurse today didn't have a clue really

Troya18 profile image
Troya18

Thanks I will see doctor on Friday - hope she knows about all this !

Troya18 profile image
Troya18 in reply to Troya18

Or shall I just up my dose to 100 myself then get re tested in 4 weeks ?

Jazzw profile image
Jazzw in reply to Troya18

I wouldn’t double your dose - a raise of 25mcg at a time is usually the way to go. So you could up it to 75mcg if you have sufficient supplies of levothyroxine.

SlowDragon profile image
SlowDragonAdministrator

Nice guidelines saying how to start and increase

cks.nice.org.uk/hypothyroid...

Your results show you are ready for an increase in dose

Also ask for vitamin D, folate, ferritin and B12 to be tested

Low vitamin D can cause pain in joints and possibly plantar fasciitis too

Do you have Hashimoto's also called autoimmune thyroid disease diagnosed by high thyroid antibodies?

If not had antibodies tested yet ask that they are

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's. Low vitamins are more likely with Hashimoto's

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org/tuk/about_the...

silverfox7 profile image
silverfox7

It takes 6 weeks to get each new dose fully into you systems so 6 weeks is best time to get reassessed.

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