I first saw someone about my thyroid over 45 years ago and only once had blood test results that suggested any problem, of all the tf tests. I don't know what that test was but it indicated a possible problem with my pituitary gland. I have over the years had many symptoms but no treatment because of blood results.
Come up to date and the goitre I have been growing over all those years has grown to be a 'multi module goitre which has reduced by trachea to 10mm'. So I have an appointment with ENT next week.
I have discovered that there is an auto immune thyroid condition. I have already got an auto immune condition. No idea if that is relevant.
Comments very welcome re possible treatment, what might be going on and anything else words of advice.
Written by
granny-b
To view profiles and participate in discussions please or .
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
Wow. Thanks SlowDragon. That will take me some time to digest.
I have been referred to ENT by my rheumatologist and already been given an appointment for next week. I will see where I go from there armed with the info you have given me.
I have been on high dose steroids for 2.5 years so that may interfere with immune system tests.
Autoimmune thyroid disease (Hashimoto's) a very high percentage of us find gluten free diet essential
Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's gut connection is very poorly understood
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Newbie
Newbie!
Newbie! 
NEWBIE
Newbie
