Thyroid UK
90,783 members105,137 posts

Dr wants me to stop taking levothyroxine

Been taking 50mg levothyroxine for several months, after last blood test dr sent results to endo at hospital who have advised I stop taking Levo altogether and dr says to start hrt. Not happy about this decision as most of my symptoms are hypothyroid related. Any suggestions, I am going to seek a 2nd opinion too but can’t get to see another dr for 3 weeks! Help!

8 Replies
oldestnewest

You need to post your latest results so others can advise you of your next move.

2 likes
Reply

Yes I will Do, just dont have them to hand atm. I'm just reluctant to stop taking levo completely.

1 like
Reply

Please do not until members here have seen your results :-)

3 likes
Reply

Sounds like your doctors don't understand your Hashimoto's. Endo maybe a diabetes specialist? Presumably your latest results are possibly showing low TSH, high Free T4/T3, if so then probably a temporary Hashi's flare. Your dose may need adjusting but it will be a temporary flare and things will settle down again.

2 likes
Reply

I am almost 72 and managed to escape HRT during menopause :-) I personally think it is something that has short changed women without checking first that their thyroids are optimal ....

So do post your thyroid test results with ranges.

3 likes
Reply

Was your blood test

Very early morning

Fasting drinking only water

Did you take your levo in previous 24 hours

Theres something crazy going on with doctors telling people to stop levo

It will make them very sick and mean months to recover again

1 like
Reply

Can you add your most recent blood test results for TSH, FT4 and FT3 plus vitamin D, folate, ferritin and B12

With high antibodies this confirms you have Hashimoto's and as already found strictly gluten free diet helps too it's obvious you need Levo (and possibly small dose of T3 adding too)

Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,

"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.

In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.

Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.

This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."

You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor

 please email Dionne at

tukadmin@thyroiduk.org

Also request list of recommended thyroid specialists at same time

Official NHS guidelines saying TSH should be between 0.2 and 2.0 when on Levothyroxine for majority of patients

See box

Thyroxine replacement in primary hypothyroidism

pathology.leedsth.nhs.uk/pa...

Professor Toft recent article saying, T3 may be necessary for many

rcpe.ac.uk/sites/default/fi...

Reply

Do you have your results now - with ranges ? If so start a new post so more people see it 😊

Reply

You may also like...