Unseen post...

[Lisas_tired]

Hi, just wondering if my previous post has been seen regarding Sjogrens/Lupus?? Just checking this is on the feed... thanks x

[Clutter]

Lisas_tired,

There are no answers to it yet.

healthunlocked.com/thyroidu...

[Lisas_tired in reply to Clutter]

Hi clutter, that’s what I was confused about, on past posts, they’ve gotten replies pretty much straight away so was wondering if it has been posted/seen xx

[Clutter in reply to Lisas_tired]

Lisas_tired,

It has been posted but not yet, perhaps, seen by people with Lupus and Sjogrens who may be able to help. If you've not had any replies by Monday feel free to repost your questions.

[Lisas_tired in reply to Clutter]

That’s ok, Thankyou 😘😘

[Silver_Fairy]

Are you a member of Lupus UK on here? They may be able to help more.

[Lisas_tired in reply to Silver_Fairy]

Oh I’ve only come across lupus Australia 🤦🏼‍♀️ that’s all that was coming up, thanks, will have a looksie now xxx

[Silver_Fairy in reply to Lisas_tired]

healthunlocked.com/lupusuk

[shaws Administrator]

This is re:

healthunlocked.com/search/s...

[CarolineC57]

I've just looked at your other post, Lisa, and as well as the lupus forum which has been suggested to you I'd also suggest trying NRAS on here. They deal mainly with rheumatoid arthritis but also have members with sjogren's and lupus.

I've been tested for both myself since I've got all the dryness problems you talk about too, but in my case my ANA came back negative, and a lip biopsy they did for sjogren's was also negative, so they're saying "no" to me at the moment. Personally, I think I do have something like this though since I have all the symptoms and RA runs in my family.

Good luck in your search for answers. I, too, am still seeking answers - and, hopefully, some suitable treatment.

[Lisas_tired in reply to CarolineC57]

Aww thanks Caroline xx appreciate your response xx Hope you find some answers too x