Increasing Tai NDT or trying T3?

[butterflyfairy]

Hi ...still so very ill with M.E. but NDT helping thyroid...although still hypothyroid symptoms as puffy fingers, full face and fullness under chin. No hair on legs/arms, still overweight, thinning of hair on head and down below! no periods.

but bloods say I am fine...

do any of you self medicate with Tai NDT and not bother with bloods? as bloods do not show correctly as only small measure. I am on 5gr now and started slowly from October 2015. when they were sold online store the feedback showed many people taking them as they felt needed but of course I am bit worried.

I am very unwell and been so for almost two decades. I treat my adrenals with adrenal glandular. The film UNREST is helping to promote need for biomedical tracers for M.E and I believe the endocrine system as well as nervous systems is affected by the said condition. I just doing my best to be well and would appreciate any positive comments please. I am still bedbound/housed bound and lost so many years of my life

[Clutter]

Butterflyfairy,

Bloods will show whether you are biochemically under or over medicated or optimally dosed. If you are still symptomatic perhaps your bloods are not fine? If you post the results and ranges I can advise.

My hair started coming out in clumps when I was overmedicated with high FT3 but I didn't have other symptoms of overmedication.

I think it was a couple of years after I was optimally dosed before underarm and leg hair started regrowing. Growth is sparse compared to what it was pre hypothyroidism.

[shaws]

Blood tests are useless - they should only be used as a guide - and the priority is the patients' clinical symptoms. The aim of which is to relieve all of them by optimum dose of thyroid hormones and the addition of T3 or prescribing NDT.

thyroiduk.org/tuk/about_the...

Doctors don't know much more than keeping the TSH in range. Seem to be unaware that a TSH of 1 or lower is preferable and rarely test FT4 and FT3 and antibodies. Do they also ensure our vitamins/minerals are optimum as deficiencies can also cause symptoms?

[butterflyfairy in reply to shaws]

Hi blood tests never worked for me and Dr peatfiled told me about NDT in 1999 but he said I was a complex case!

My hair has not fallen out it has grown a little.

The NDT is helping me I have no hyper symptoms. I was on T3 and armour and lost the weight but no improvement with the malaise down to the M.E.

GP did basic blood work on vitamins and minerals but may need to try private.

I am not sure if hair loss is due to adrenals as read that no hair on legs is adrenals but also could have low stomach acid but read that T3 helps with that.

just wish that the doctors would know more about it all. M.E alone is hard enough but MEA are trying change NICE guidelines.

I think I will try increase a little and see as the benefit of loosing some weight, bit more energy and some hair growth shows it is better for me.

it is a maze for sure!

[shaws in reply to butterflyfairy]

The following link may be helpful and Dr Lowe's advice on taking/increasing NDT and also making a chart. Excerpt:

"Mary had tried for years to overcome her symptoms with life-

style practices. She maintained a wholesome diet, took a wide array

of nutritional supplements, and exercised regularly. Because she

was already doing these metabolism-regulating practices, I

expected her to have an uncomplicated recovery by using the desic-

cated thyroid.

Mary got her baseline symptom scores and posted them to her

line graph before she began to take desiccated thyroid. Then she

started taking 1 grain (60 mg) of desiccated thyroid at the begin-

ning of the second week of her self-monitoring. Figure 2 shows

what her graph looked like at the end of the first month."

nebula.wsimg.com/b822d36efe...

[silverfox7]

Can you post your vitamin etc results with their ranges? Doctors are t too good with advice on those. They either tell you that you are fine when you aren't or say you have problems but the treatment isn't right! Likexeith thyroid meds it's where in thecrange that is important. Without these levels being optimal then your thyroid won't work as it should so we need to look at the bigger picture.