Advice please: Could anyone shed light on my... - Thyroid UK

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Advice please

AriV profile image
AriV
11 Replies

Could anyone shed light on my results please I feel sick to my stomach, diarrhoea and feeling washed out

Thanks

TPO antibody 347 (<34)

TG antibody 615.3 (<115)

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AriV profile image
AriV
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11 Replies
Marz profile image
Marz

You have only posted your anti-bodies which confirm Hashimotos or auto-immune Thyroiditis.

Do you have any other results you could share. Are you on any treatment ? Have you had B12 - Folate - Ferritin - VitD tested ?

Sounds as if you are having a Hashi's flare up .... what has your GP said ?

AriV profile image
AriV in reply toMarz

I'm meant to be taking levo but I'm afraid to because of my symptoms :(

Marz profile image
Marz in reply toAriV

What are your symptoms ?

AriV profile image
AriV in reply toMarz

As above, started 3 weeks after taking vit D 9000iu

Marz profile image
Marz in reply toAriV

Oh - sorry did not think they warranted you not taking Levo - as sometimes these symptoms disappear when we are correctly treated.

Taking 9000 IU's of VitD - is that weekly - or daily and are you still taking VitD ? What was your test result ? Did you take the co-factors - Magnesium and VitK2-MK7 with the VitD ?

What about the other tests I mentioned above - B12 - Folate - Ferritin - have they been tested and do you have the results. Always obtain copies of your test results that you are legally entitled to - so you can monitor your progress and post here with information that will help members comment.

You can feel washed out with Low Ferritin - B12 - Folate - and of course low thyroid hormones. You also could be experiencing a Hashi's flare ... link below to other discussion here on the forum.

healthunlocked.com/search/h...

Please post your results when you have them and members will comment and support.

AriV profile image
AriV in reply toMarz

I take vit D 9000 once a day with co factors but not magnesium, will post thyroid now

Vit D 62 (50 - 75 suboptimal) taking 9000iu from 800iu in January 2018

Ferritin 64 (30 - 400)

Folate 2.3 (2.5 - 19.5)

Vitamin B12 445 (190 - 900)

TSH 4.66 (0.2 - 4.2)

FT4 14.8 (12 - 22)

FT4 3.4 (3.1 - 6.8)

Marz profile image
Marz in reply toAriV

As you can see your TSH is over range indicating you are Hypo. The amount of T4 your thyroid is producing is LOW in range hence the T3 - it has to convert into - is also LOW. Both need to be higher in the range and taking Levo will achieve this - hopefully.

T3 is needed in every cell in the body and you do not have enough to go around the trillions and trillions of cells. That is when things begin to go wrong :-(

B12 could do with supplementing - say around 1000 mcg daily along with a good B complex - which should improve your Folate/Folic Acid. B12 and Folate work together in an important way. I would also supplement some Iron as Ferritin needs to be around the 70+ mark - so you are almost there. Look around the Forum for ideas about Iron - and take it with VitC to aid absorption. Re-test after a few weeks.

Jarrow Methylcobalamin B12 1000 available on Amazon - and Thorne Research has a good B complex.

Almost everyone in the world is deficient in Magnesium - there are lots of different types so research carefully.

Maybe the VitD has upset you - do you take it with your fattiest meal - it is fat soluble. You do not need to be taking so much VitD so I would reduce it to around 3500/4000 IU's. I take Healthy Origins which contain Olive Oil. Have you checked the ingredients ?

AriV profile image
AriV in reply toMarz

Thanks my GP has said no need for infusion yet as ferritin is rising on its own without iron tablets which I was prescribed in 2013. B12 I have injections every 3 months. I take vit D before bed, it contains xylitol and sunflower oil

Marz profile image
Marz in reply toAriV

Maybe the xylitol is upsetting your gut 😊

bantam12 profile image
bantam12 in reply toAriV

Try lowering your vitd dose, you may be one of those who cannot tolerate vitd supplements especially in high doses.

SlowDragon profile image
SlowDragonAdministrator

High vitamin D really needs magnesium and vitamin K2 Mk7 as well.

Can cause bone pain

But as bantam12 says some can't tolerate high vitamin D (medics tend to tent this)

You could try vitamin D mouth spray by Better You. This avoids the gut and is absorbed in mouth

But it's more likely you feel ill due to your very high antibodies, this confirms diagnosis is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's

You really need to start on 50mcg Levothyroxine. Try taking at night if it makes you feel ill taking in morning

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

But don't be surprised that GP or endo never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

Persistent low vitamins with supplements suggests coeliac disease or gluten intolerance

gluten.org/resources/health...

Low stomach acid can be an issue

Lots of posts on here about how to improve with Apple cider vinegar or Betaine HCL

thyroidpharmacist.com/artic...

drmyhill.co.uk/wiki/hypochl...

scdlifestyle.com/2012/03/3-...

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