Thyroid UK

Upcoming endocrinologist appointment - advice please

Upcoming endocrinologist appointment - advice please


I have my first endocrinologist appointment in a few days. I am just wondering what to expect and also what information I should'v be taking to get the most out of the appointment.

September 2017 tsh was 9.2 {0.27-4.20}

November 2017 tsh was 8.9

5th January 2018 tsh was 4.5

8th January 2018 tsh was 6.6

My GP works on a TSH of under 6 is ok and were not willing to raise my levothyroxine (I'm on 75) following the results on 8.1.18.

3 Replies


There's something off about your results. TSH 6.61 indicates undermedication but FT3 9.89 indicates considerable overmedication.

Thyroid peroxidase and thyroglobulin antibodies are positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

Active B12 >35 is unlikely to be deficient.

Folate is low in range. You can increase folate by eating more leafy green veg or supplementing folic acid or methylfolate.

VitD is insufficient. Your GP should refer to local guidelines or the Do NOT accept a prescription for 800iu which is a maintenance dose prescribed after vitD is replete >75. My sister's GP prescribed 2 x 20,000iu weekly when her vitD was 40. You might want to buy your own vitD as it isn't expensive. Softgel capsules are better than tablets.

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Vitamin D should be taken 4 hours away from Levothyroxine.

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Hmm, very odd results. I'd be wondering why TSH is so high. Do you take B vitamins containing biotin or a hair and nails supplement? If so, the tests are invalid. If not, I'd be wondering if you have a TSH-producing tumour or something like that. Did you take your meds before the test?

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I started taking probiotics mid January so wasn't taking anything apart from levo prior to the bloods. I made sure I left a good 24 hours between taking levo and having bloods done. I'm hoping the endocrinologist can shed some light on it all x


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