Is levothyroxine right for me???PLEASE HELP

[Ghdjdsl]

If I purchase aload of "levothyroxine"100mg?would tgey be right for me?PLEASE HELP,heres my results = hypothyroidism

[Mary-intussuception]

Have you seen your GP yet? What are your symptoms?

You are deficient in B12 and need urgent treatment for this. See your GP today.

You also need Vitamin D tablets.

Look at the results in red.

Wouldn't your GP do tests?

See GP urgently with these results and a list of your symptoms.

You could look up symptoms of Pernicious Anemia. You could post these results on Pernicious Anemia forum along with your symptoms for comment but you need to see your GP today.

You haven't tested positive for Thyroid Antibodies - so no evidence of Hashimoto's in these results.

[Ghdjdsl in reply to Mary-intussuception]

My g.p has seen these private results,I first asked my doctor to have my bloods.checked for thyroid,they came bk that my t4 is low & tsh high.

He said everything else came bk normal.

2mnths later I paid £250 for a private blood test to check everything within thyroid,& hearer are my results.

My g.p has seen these,he just told me yes I see you feel feel tierd,he adviced to come bk every 2mnths to have another blood test.

This has been going on since sept last year.he recommended anything for my symptoms,I did ask!!

So instead since this time.ive been taking vitamin d3,sea kelp? & vtamin b12 from holland&barrett.

I still feel fatigued,low self esteem,I'm now 3stone over weight & Carnt control my diet well.

I get muscle pain all the time

[Ghdjdsl in reply to Ghdjdsl]

Sorry he hasn't recommended anything for me at all.

[Ghdjdsl in reply to Ghdjdsl]

He has seen my results I've had 2x blood tests now,I still fell ill and now herbal supplements have helped

[Mary-intussuception in reply to Ghdjdsl]

Sorry to hear of that GP's attitude. Is there another GP you can see in the practice. Is there anyone you can take with you for support?

You could try phoning Haematology at your nearest hospital and ask to speak to someone there. Ask them what you need to do to get tested for Pernicious Anemia and immediate treatment for your LOW B12.

Or

Phone your GP practice - ask to speak to the Senior Partner or the Practice Manager as a matter of urgency.

You need that LOW (below range ) B12 addressed and treated asap.

Look at your Ferritin it is also at the bottom of the range. You need a Full Blood Count and Folate tests. Try and get a same day appoinment at Haematology or Monday early morning first thing).

[Mary-intussuception in reply to Mary-intussuception]

ps

4th reply

Sorry, Yes, you had Folate tested! It's not in red but is at the bottom of the range:

B12 injections / PA testing Priority.

Vitamin D prescription.

Folic Acid prescription for after B12 treatment commenced.

[Ghdjdsl in reply to Mary-intussuception]

Thankyou x

[Ghdjdsl in reply to Mary-intussuception]

Thankyou you so much for your advice,I will take this on board,hopefully I will get the treatment I need asap x

[Mary-intussuception in reply to Ghdjdsl]

Please, please do not take kelp.

Phone your GP practice now as in my other reply 2 minutes ago.

And phone the hospital Haematology department.

Hope you get somewhere today.

If not, start again 8am Monday.

Meanwhile try to have a restful, stress free weekend. Eat well - treat yourself to your favourites food?

It's not easy, I know, when you are so tired and symptomatic and ache so much, AND have a proven clinical need (B12 and Ferritin results )and GP doesn't act.

I never got around to making formal complaints - if you wish to do so I would suggest then, that you try and get treatment first (unless that's the only way to get it).

Try speaking with the Practice Manager and say you need to be listened to, have your symptoms and test results acted upon and appropriate treatment now. Not a "wait and see in 2 months" attitude ! You are ill - this has been going on for too long and you have these blood results.

[Ghdjdsl in reply to Mary-intussuception]

Thankyou for replying,I have had to get used to this on a daily basis,I have to fight with my body to keep going with work house maintenncebeing active for my 3yr old.

Ive been off work 3mnths,then decided to quit bcoz of daily struggles.

I was a healthcare assistant at my local hospital,I showed my manager sister nurse & 2x doctors on my ward & they didn't have a clue either.

Only advice they gave me was making an appointment with hemotology X

[Mary-intussuception in reply to Ghdjdsl]

That's the right advice. Could they help you to get an appointment with Haematology? Contact the Sister asap??

Staff Health should have been able to arrange this. I didn't know you were an NHS employee. They should have helped you to stay in work. Haematology is the Speciality that you need.

[bluebug]

As already said see your GP first with the results. Make an urgent on the day appointment this morning as soon as they open.

For vitamin D make sure you do not accept a 800iu prescription you want a loading dose otherwise your level will not rise. With vitamin B12 they are likely to put you on tablets - push for B12 injections. With your TSH if this is the first one with a high reading but which is under 10 you may have a fight on your hands to get prescribed levo particularly due to the deficient vitamin D and vitamin B12.

Once you have seen the GP come back and post an update of what they have prescribed and told you, so you can get more advice.

[Ghdjdsl in reply to bluebug]

I will thankyou everyone for your kind advice,I now feel like I'm not alone x

[Mary-intussuception in reply to Ghdjdsl]

You're not alone - everyone on here cares. Keep us informed xxx♡

[SlowDragon Administrator]

Absolutely not. You need to address very low vitamins first. Then retest in 2-3 months

You need to see GP to get extremely low B12 tested for Pernicious Anaemia before starting B12 injections and folic acid supplements for low folate too. Folic acid supplements should not be started until after first B12 injections

Do not take any vitamins (or multivitamins) before GP tests

You have very low Vitamin D too. Should be prescribed loading dose by GP really. If not, you are going to need to self supplement.

Look up your local CCG guidelines for vitamin D deficiency

Eg Oxfordshire

oxfordshireccg.nhs.uk/profe...

Your ferritin needs looking at too. Very low. Ask GP for full iron panel

Likely Anaemic. Eating liver once a week should help. But you probably also need ferrous fumerate supplements as well

These vitamins may be low due to thyroid, but it could be thyroid is low due to vitamins. Get them sorted first and retest.

Look at low stomach acid as possible cause too

Are you taking Gaviscone, omeprazole or lanzaprole or anything similar?

Low stomach acid can often be an issue

Lots of posts on here about how to improve with Apple cider vinegar or Betaine HCL

thyroidpharmacist.com/artic...

drmyhill.co.uk/wiki/hypochl...

scdlifestyle.com/2012/03/3-...

healthunlocked.com/thyroidu...

Other things to help heal gut lining

Bone broth

thyroidpharmacist.com/artic...

Detailed supplements advice

healthunlocked.com/thyroidu...

[Ghdjdsl in reply to SlowDragon]

Thankyou for all your helpful advice will try my best to take all this on board with myself & g.p x

[Kandahar in reply to SlowDragon]

Found this year old comment you made about low acid stomach. But then you asked about Omeprazole etc. I’m confused. Back in 90s I was prescribed Betaine for low acid and malabsorption, low magnesium, had B12 injections and suffered from chemical allergies etc. Now, since taking doses of ibruprofen, I’m told I have acid reflux, burnt oesophagus. So given Omeprazole and told to take morning and night because of continuing feeling having straw caught in my throat. But DO I HAVE AN ACID STOMACHE OR NOT? Please help if you can!

[SlowDragon Administrator in reply to Kandahar]

Suggest you put a new post up asking members

Presumably you were still hypothyroid on just Levothyroxine, and now starting on addition of small dose of T3

This should improve gut function, FULL Thyroid and vitamin testing needed 6-8 weeks after starting on T3

Low vitamins are extremely common with poor gut

When were vitamins last tested

Do you have Hashimoto's also called autoimmune thyroid disease diagnosed by high thyroid antibodies. If so many, many people find strictly gluten free diet helps or is essential

Acid reflux often improves if remove food that are causing issues

There's hundreds, if not thousands of posts on here about low stomach acid and being hypothyroid

[soppysokes]

Absolutely not! Take these results to gp as a first thing to do.gp will probably want to retest in a month or so to check tsh result is not due to virus or some other transient thing. Your bits/minerals do need to be addressed by gp before you self treat. If you just get and take levo and it not right for you it would probably do al lot more harm than good.

[Suin]

Hi just to point out your personal info is on your picture, maybe you want to edit? I done the same thing myself before and was glad someone told me 👌🏻

[greygoose]

Stop taking the sea kelp. It is probably making you worse because iodine is anti-thyroid!

[Clutter]

Ghdjdsl,

I have deleted the image of your results to protect your privacy as a lot of your personal information was visible.

If TSH 5.59 is the first abnormal result you have had your GP may want to rule out TSH being elevated by a virus or infection before diagnosing hypothyroidism. It is is normal protocol to retest after 2-3 months when a virus or infection would be expected to have cleared.

Self medicating 100mcg Levothyroxine will almost certainly overmedicate you. If you are determined to self medicate start with 50mcg and retest in 6-8 weeks

B12 139 is severely deficient. GP should initiate B12 injections. Investigation should be done as to whether you have pernicious anaemia causing deficiencies. Symptoms are listed in b12deficiency.info/signs-an... healthunlocked.com/pasoc are the experts on PA and B12 deficiencies if you need more advice.

Vitamin D 29 is insufficient. Your GP should refer to local guidelines or the cks.nice.org.uk/vitamin-d-d... Do NOT accept a prescription for 800iu which is a mainte-nance dose prescribed after vitD is replete >75. My sister's GP prescribed 2 x 20,000iu daily per week when her vitD was 40. Vitamin D should be taken 4 hours away from Levothyroxine.

[Ghdjdsl in reply to Clutter]

Thankyou for you advice 💖 will check the links out,& have a list of ques & queries to hand to my g.p now.

Hopefully by me researching info & advice I might be taken seriously.

X

[SlowDragon Administrator in reply to Ghdjdsl]

With results like this you must be feeling terrible.

Make the most of the sunshine in Lanzarote

[Ghdjdsl in reply to SlowDragon]

Thankyou X