Hi, I just thought I would update on my experience of going private.
I was diagnosed with hyperthyroidism 7 months ago I had to wait for my first endo appt on nhs for 4 months. This endo said my gp had controlled my thyroid well on carbimazole as my bloods remained ‘normal’ since a month after diagnosis. I had been feeling fine throughout this time working full time successfully passing exams for work running around 26ish miles per week then I saw the endo... it was like she had a voodoo doll in her office!!
The day after I left her office I began to get really ill with hyper symptoms and I have been like this ever since. I saw this endo once more then she left I then had another endo and by this time received my 4th different thyroid diagnosis he said I’ll see you in 8 weeks time. I then got a letter through the post which stated my next appt was in 6 months time!!
I didn’t want to wait this length of time so I called his secretary and she said due to annual leave and stresses on system she would try her best to bring closer but was unsure. I decided to go private.
I researched a thyroid specialist in my area and went to the appt he confirmed I do not have an auto immune disease I have hyperthyroidism as some of my anti body tests are marginally elevated and apparently can slightly fluctuate from day to day. I asked him about my heart rate, it doesn’t race but it beats hard so I am aware of it not all the time but generally in the morning and at night... he said this has nothing to do with my thyroid and I have to go for an ecg... is this correct? I thought loud heart beat or racing heart is a symptom of being hyper. I also asked him about my eye movement causing dizziness he said again this isn’t to do with thyroid disease.
So I guess the reason why I’m posting is for anyone thinking of going private and splashing out I would really consider this carefully as will you get any further than what you have with an endo on nhs?, sometimes it’s good to get a 2nd opinion, (even if I still do not agree with all he said!) I do feel I have learned abit more but I guess all I want is someone to wave a magic wand and to make me feel better so I can get my life back!!