Hi all i am very disappointed again and have come to the conclusion that does any endos actually know what they are talking about and they dont have any interest in making us feel better.
I today spent 40 mins in a room with a endo who has told me nothing that i didnt already know and also said that "your tsh is great and really going up now" my tsh is now hypo levels at 5.48 lab range upto 4.00. I said" my tsh is over range now and hypo and it will continue to rise on 5mgs carbi and my frees are low in range, so i dont agree its great"
She then at this point she said you are hyper-i said im not hyper any more im hypo, she did ask my symptons, cold. Pins and needles, trembling, palps, breathless etc and i did say these are hypo symptons aswell, she was shaking her head and tutting, very rude i thought and at this point she went out of the door and brought in another endo to back up her theory of hypo symptons are not trembling and palps etc and are definitly hyper symptons -i disagreed again and also stated that i am overmedicated on carbimazole and that i had titrated dose to three quarters of the tablet and as you can imagine this went down like a lead brick- he said that people do not titrate like that and there is no such thing as quatering a tablet etc and should be given the all xlear by them, at this point i had lost interest, i told them i am not going back up to 5mgs so we come to the agreement of taking 2.5 mgs a day and will see me back in february.
I have also mentioned about hashis but that fell on deaf ears and caught sight of the eye roll, they will be doing another thyroid scan as i am not happy with regards to nodules that maybe pressing on my windpipe, even though he said this was impossible!!
The last thing he did mention was that i was quite knowlegable on my thyroid condition and implied that thyroid uk told lies and could not offer any good advice and knew nothing about the workings of the thyroid as they are not proffessionals. Just felt that we are alone in this, all i want is too feel well again and normal. I will get there it is just taking ages
My wish for myself and everyone here is that we deserve proper endos who listern and take things seriously instead of generalising that one size fits all.xx