Endo has decided she is happy to leave me on 50mcg. I'm suffering with aching legs and tremors, issues with eyes aswell. Lots of Neuro symptoms really.
What do I do now? Do I source T4 online and increase myself? Do I go NDT route? Should I attempt going to see GP - although I suspect she will just side with the Endo.
Any tips or advice would be much appreciated. I only joined the club last summer after having half my thyroid out.
Thanks
Neal
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NealF
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Medichecks Thyroid or Blue Horizon Thyroid are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results
You need a new endo.
Email Thyroid UK for list of recommended thyroid specialists
please email Dionne:
Tukadmin@thyroiduk.org
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne: tukadmin@thyroiduk.org
Prof Toft - article just published now saying T3 is likely essential for many especially if had thyroidectomy
This is yet another Endocrinologist who doesn't deserve the name. You are clearly underdosed on 50mcg of levothyroxine, which is a starting dose. The aim of levo is to bring TSH to 1 or lower and allow FT4 and FT3 nearer the top of the ranges.
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Where do I do next? Help with results please
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Any ideas where to go from now please?
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