Hi, I am new to this site and am desperate for answers! so i am sorry if this post is so long but my story is pretty lengthy. I am from the USA and was diagnosed with t4-t3 conversion issue december 2016 by an integrative dr, a regular endo said i was fine. I have been on t3 only since. Before I saw the dr i was able to lose weight and was 124lbs... since treatment i am now 137. this actually makes me cringe so much because it seems inevitable no matter what I do, I keep gaining weight with every increase of my dose and i have never been above 132 before.
a little background about me and my hypothesis of what happened.
some one was handling my nutrition and had me on a low carb diet and severly low calories, like 1200 a day. I am super active, I needed around 2000 calories to keep up with my lifestyle... but I didn't pay attention to what this man had me eating daily, I just did it, for a long time... about 2 years. eventually my appetite stopped, I was never hungry and getting 1,000 calories was difficult. this type of eating is linked to low conversion of thyroid hormone and causes adrenal fatigue... simply increasing calories and carbohydrates fixes this but i didn't know this at the time. When i went for my initial blood work for the integrative dr, he said my thyroid was shot, done doesn't work... he scared me. I have no family history of thyroid disease.
Every time i see him he says my thyroid is not responding to therapy therefore i need MORE t3... but with more t3 i get racey heart, extreme anxiety and weight gain. Also with each increase my liver enzymes increase.. i've never had an issue with this before in my life. I want to get off this medication. I lowered my own dose from 28mcg to an average of 18.50 by swapping between 15mcg and 22 mcg T3 every other day. does anyone have any advice on weaning off? I also have an appointment with another doctor but thats in march.