Correct Carbimazole dose

[Area]

I was diagnosed with graves over 2 years ago and have been on a low dose carbimazole since August 2016

My problem is that with just 5mg per day my t3 and t4 drops significantly and within a month I am hypo. And then if I reduce my dose then my t3 and t4 increases significanly again.

I don't know what to do?

[Clutter]

Area,

Perhaps you could try 2.5mg/5mg alternate days.

[Area in reply to Clutter]

I tried that I my t3 and t4 increases

[Clutter in reply to Area]

Area,

You have reduced dose so of course T3 and T4 rise. As long as they only rise slightly and remain within range it's fine.

[trelemorele]

What are/were your thyroid levels (with the ranges) before going on Carbimazole?

[Area in reply to trelemorele]

They were about 4 times the normal range

[Nathalie70]

It may be time to stop it. The treatment is 12 to 24 months. Mine was stopped after only 7 months and I have Graves. Your TSH receptor antibodies need to be monitor every 3 months during the treatment. If they're negative, it's time to stop the treatment.

[Area in reply to Nathalie70]

So when you stopped did your T3 and T4 increase?

[Nathalie70 in reply to Area]

No. They stayed the same. My TSH decreased but it was quite high.

A T3 and T4 increase means nothing: as long as they both stay normal, there is nothing to worry.

[Area in reply to Nathalie70]

My t3 and t4 came out of the normal range within a couple of weeks

[Nathalie70 in reply to Area]

Within a couple of weeks! That's so fast. It takes up to 4 weeks for your body to get fully rid of Carbimazole. You really need to speak to your endo, something is very peculiar in your case.

[Area]

Thank you. I will get those tested because I don't think I did

[Nathalie70 in reply to Area]

It's a very expensive test and the NHS doesn't carry it out. I have a private insurance. I'm afraid you'll have to get the test privately.

[Area in reply to Nathalie70]

Okay I will speak to my Ends about it