Thyroid UK
87,610 members102,320 posts

T3

Hi all,

Just an update with my underactive thyroid, I decided to see a private endocrinologist last week hoping to get some positive answers, well I do have Hashimotos which I knew I had, and other symptoms that i have i thought would be associated with hypo but he said are not, like falling over, slight hard of hearing so he's referred me to a neurologist for that, he is trying me on T3 for 2 weeks 10mg but it' a private prescription costing £125 my normal Gp will not prescibe yet until it works for me so I have to pay private or find it abroad, so I'm hoping someone on here could help me with what to do regarding finding it in another country.

Also my endo has asked my doctor to give me regular B12 injections so fingers crossed this will work for me,

Thanks for reading and hoping somebody can help x

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I don't understand why your private Endo hasn't suggested how you can fulfil your prescription? It doesn't seem very helpful but then I don't know how private medicine works. In our location the NHS won't accept the direction of a private practitioner in the prescribing of T3, (CCG prescribing policy) I don't know about other locations.

What was your B12 blood test level along with the lab ranges? I see greygoose suggested B12 was tested in your previous post as your symptoms were certainly suggestive of B12 deficiency. And what about the other vitamin blood tests did you get ferritin, folate and vitamin D done?

If you had problems with levothyroxine and dose increases, it's possible you'll have problems with T3 unless you get any vitamin deficiencies sorted out first.

If you have a B12 deficiency, it's likely you're deficient in other vitamins. Also, what are your thyroid blood test results as I can't find any results on any of your posts. Always get copies of all your blood test results whether done privately or through NHS that way you'll have a record for yourself and you're more likelly to get good advice if you can post test results on this forum.

Sorry, I can't help sourcing T3 but I hope someone can.

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Absolutely essential to test vitamin D, folate, ferritin and B12 FIRST before starting T3. If any of these are too low T3 will make it worse

Can not see any vitamin test results on your posts

Most endo's seem to not consider vitamins, but they are very often too low and essential to be good levels

Low B12 is very common and linked to dizziness and poor balance. You MUST have test for Pernicious Anaemia before starting B12 injections and base levels tested.

Do you have Hashimoto's? Presumably been tested for high TPO and TG antibodies

If so gluten is often an issue too

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He is at a hospital in Sheffied ... have a google. 😊

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sth.nhs.uk/news/news?action...

Now on the PC so able to search and post !!

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CMoor,

Is your prescription for 20mcg Liothyronine?

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No it's for 10mg.

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Cmoor,

You need to click on the GREEN Reply button at the bottom of Clutter's response to get your reply threaded and Clutter notified. :-)

I think you mean 10 micrograms. :-)

Clutter

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CMoor,

Does it literally say 10mcg or 2 x 5mcg?

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T3 TRIODOTHYRONINE 10mg 14 days

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Cmoor,

I'm not aware that 10mcg T3 tablets exist. UK T3 is 20mcg. I'm aware of Pfizer Cytomel and Perrigo Liothyronine 5mcg tablets which can be imported from USA. You may be able to get 28 x 5mcg tablets but it will be expensive. Alternatively you can buy 25mcg T3 without prescription. The closest you will get to 5mcg doses is to quarter the tablets with a pill cutter which will give you 6.25mcg doses.

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