Confused if I'm hypo or hyper-back with more la... - Thyroid UK

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Confused if I'm hypo or hyper-back with more lab results

Rweir39 profile image
11 Replies

Hello Everyone,

I hope you all had a good Christmas! I'm back with test results that you all recommended! I'm still confused about being hypo or hyper. I was hyper for 15 yrs and all of a sudden I am hyper and, feeling like I'm dying.

My Dr keeps insisting that I am hyper and to continue taking methazolene but, it'

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Rweir39 profile image
Rweir39
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11 Replies
Rweir39 profile image
Rweir39

I posted this before I had finished my post ugh. My phone is too sensitive ugh. My results are the following

Thyr Perox Ab

3785.9 unit/mL (High)

Reference Range: 0.00 to 60.

TSH Scrn

0.010 uIU/mL (Low)

T4 Total 1.70 ng/dL (High)

Reference Range:

eference Range:0.76 ng/dL - 1.46 ng/d

T3 Total

2.65 ng/mL (High

Sorry for the bad post.

greygoose profile image
greygoose in reply to Rweir39

You have very high TPO antibodies, so you have Hashi's. Hashi's is basically hypo, due to immune attacks on the thyroid. And, after these attacks, the dying cells dump all their stores of hormone into the blood, so levels rise temporarily. However, this extra hormone will, eventually be used up, and you will become hypo again.

Your TSH is very low, at the moment, but on its own, the TSH means little. Unfortunately, your doctor did not do the right T4 and T3 tests. It is Free T4 and Free T3 that needs testing, not the Totals. So, we have no idea of those levels. The Total tests, don't give any useful information, I'm afraid.

So, basically, your doctor is wrong. Even if you have high levels of T4 and T3, you are not truly hyper, and the utility of carbimazole is debatable.

Rweir39 profile image
Rweir39 in reply to greygoose

Thank you so much for your input! I feel hypo and not hyper at all. I just spoke to him and he said that everything was normal! I feel miserable and so swollen. I gained 40 lbs in 2 mo! I'm calling another Dr for a second opinion now for sure.

greygoose profile image
greygoose in reply to Rweir39

That sounds like a good idea! :)

Nanaedake profile image
Nanaedake in reply to Rweir39

I agree, get another opinion, sounds like carbimazole might not be the right way to go if you are hypothyroid with Hashimotos. Not surprising you feel unwell.

Marz profile image
Marz

Having Hashimotos can mean you swing from being Hyper to being Hypo - so your treatment does not seem correct. What supplements or other meds do you take ?

Rweir39 profile image
Rweir39 in reply to Marz

I only take the methazolen and metropolo for my high blood pressure which is all new to me. He just told me to take vitamin D because I'm low. I got an appointment for second opinion on 1-19 which I wish it was sooner.

Nanaedake profile image
Nanaedake in reply to Rweir39

Get a copy of all your blood test results for vitamins etc, vitamin D, folate, ferritin and B12. If these haven't been done then ask your doctor to do them. When you've got the results if you post them here along with laboratory ranges people will be able to give good suggestions.

You need to know how low your vitamin D is to know how much to supplement. If it's below 30 and you're in the UK, the NHS should provide supplements.

SlowDragon profile image
SlowDragonAdministrator

Are you in UK?

For full evaluation you ideally need TSH, FT4, FT3, TT4, TPO and TG antibodies, plus vitamin D, folate, ferritin and B12 tested

Low vitamin levels stop Thyroid hormones working

See if you can get full thyroid and vitamin testing from GP.

Private tests are available

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results

Link about antibodies

thyroiduk.org.uk/tuk/about_...

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Print this list of symptoms off, tick all that apply and take to GP

thyroiduk.org/tuk/about_the...

See Box 1. Towards end of article

Some possible causes of persistent symptoms in euthyroid patients on L-T4

You will see low vitamin D, folate, ferritin and B12 listed

onlinelibrary.wiley.com/doi...

Rweir39 profile image
Rweir39 in reply to SlowDragon

Yes, I'm in the US but, all this information is very valuable to me, I greatly appreciate your response. I now don't feel so confused and, armed with information for next Dr ap poitment. So tha k you everyone!

Treepie profile image
Treepie

I think the poster is in US given reference to Synthoid in an earlier post and writing the date with the month first.Would help if non uk posters mentioned where they are to save wasting time in the reply.

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