T3

[thyroid555]

Hello,Merry Chrisstmasvtovall

Does anyone know when the new guidelines for T3? Will be drawn up by? Thankyou bless you all

[SlowDragon Administrator]

They are not rushing........ Autumn 2019

[thyroid555]

Thankyou very much for your reply, that is a long way off.... I think it is terrible what they have done and what are we meant to do until then?

[shaws Administrator in reply to thyroid555]

I believe it's their way of proving T3 is really not necessary in their view and we should all be 'perfectly well' on levothyroxine.

I do not understand how people who are supposed to be 'experts' in their field can be unaware that many do not improve on levothyroxine so 'they' are happy to let suffering continue, and continue, and continue until patient then sources their own. They also ignore research which confirms that many need T3.

Even Dr Toft who is an ex President of the BTA and this is his recent article.

rcpe.ac.uk/sites/default/fi...

So it is fair to say that before the introduction of blood tests and the TSH, we were treated much better and diagnosed according to symptoms and given NDT on a trial basis.

They succeeded in getting NDT withdrawn and now T3.

I think all GPs/Endos should read Dr Toft's article. Before blood tests were introduced we were diagnosed upon clinical symptoms alone and given NDT on a trial basis.

[thyroid555 in reply to shaws]

Thankyou for your kind reply, yes it was treated much better in the past before introduction of blood tests etc. I have sent my appeal letter to the CCG as they have declined me T3 and have included a copy of Dr Tofts article. I am sure it won’t make any difference and they will continue to justify their position. I am very fortunate I have a Pyschiatrist who is prescribing me T3. He has just given me a three month prescription my last T3 came from Morningside Healthcare, this T3 has come from Teva in Eastbourne so there must be more than one company making it now.

[shaws Administrator in reply to thyroid555]

There is now three companies licenced to offer T3 in UK. I was really hoping that this would be much cheaper i.e. the price, at least, before Concordia's exorbitant rise but have now read that they are just as expensive which makes it very difficult for us to be offered a T4/T3 combination which would suit many sufferers who don't improve on levo alone.

I am glad you have got a source but sometimes we may find that fillers/binders in one make could affect us in a negative way so at least you now have an option.

[thyroid555 in reply to shaws]

Thankyou for your reply, it is interesting to hear there are three suppliers but just an expensive. I think I heard on here some people were getting the German version on the nhs. There needs to be competition. I am glad Concordia are being investigated, it’s a massive scandal and we the patients suffer. I hope that we get some good news soon and hope we can pressurise them to draw up the new guidelines as quickly as possible. I do hope you have had a lovely Christmas. With kind wishes

[shaws Administrator in reply to thyroid555]

I hope everyone improves in the coming year as being symptom-free is the aim and it is possible if doctors do not concentrate upon the TSH alone and allow it to reach 1 or lower and FT4 and FT3 are in the upper part of the range.

[thyroid555 in reply to shaws]

Thankyou for your kind message and advice. Yes I hope everyone achieves best health for them. Wishng your peace, happiness and a better 2018