I've just read this article from the Telegraph with great interest. The thing that caught my eye first was the woman's initial description of her symptoms..“But I couldn’t sleep because of these huge adrenalin rushes that afterwards would leave me collapsed on the floor unable to get up. I felt like I was dying.”
I have been very ill for over 5 years, 90% housebound now and feel desperately ill. I was originally labelled with CFS/ME and then 3 years ago tested positive for Lyme Disease and co infections, was treated with numerous approaches (including 6 weeks of intravenous antibiotics in Germany) and all to no avail. I'm still so ill.
I have always suspected something is very wrong with my adrenals and perhaps thyroid. My GP tells me all bloods are normal and will go no further.
Please, can somebody help and recommend a good Endo that will think outside the box (deals with bio identical hormones) and take the time to put the pieces of potential adrenals and Thyroid problems together where nobody else has. I live in the South East but could be driven to London or further. Sorry to sound so desperate, it's just that I'm at my wits end with living life in this state
Lemnia as a first step you need to get hold of your blood test results which you're legally entitled to. Never accept NHS doctors saying everything is normal. Are the NHS aware of your Lyme diagnosis and treatment?
Are you having any treatment for Lyme disease now?
As a matter of interest, I'm hypo and also have Lyme disease. My thyroid meds do not work as they should due to Lyme.
Cinnamon Girl, thank you for your comments. I will ask for the results from GP. I have thyroid antibodies also, again, no treatment. For Lyme disease I had to do it privately as it was my test done in Germany for Lyme Disease that was positive, the UK test was negative. But as I lived in CT, USA for over 20 years I realised I needed to go further and test again. Since then I've been told there's a 60% chance of an incorrect result from Porton Down where the UK Lyme test is done. I am currently doing Rife Machine for Lyme...for the past 6 months, it's done nothing. I'm still just as ill, mostly bedridden. I'm considering going to the USA for treatment but there's no sure bet for treatment as I'm sure you know. Thank you again.
Email dionne.fulcher@thyroiduk.org for a list of member recommended endocrinologists.
Dr. Peatfield is well regarded on the forum and has a clinic in Crawley. He resigned his GMC registration so can no longer prescribe but offers advice.
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results
Come back with results and ranges on new post and members can advise
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Does this sound like Hashimoto's please?
Need organized thyroid info to take to new endo.
Good endocrologist
