Dr suggested trying ldn. I asked if i could have t3. He suggested that he could give me both. I asked if i could try t3 first. Antibodies have increased to 91 from 43 in a period of 6 weeks. So hashimotos. Symptoms.are coming more and more. But undoubtedly the worst one and the one that has broken me is the hair loss. I could live with the rest of them easily. But i cannot live wit this one. Anyone try the ldn? Any advice? I am interestd on its impact on the hair. I wouldnt be sorry if i died tomorrow. It would be a relief from how this loss has made me feel.
Ldn info.anyone? Please
I had a family member who was always sick.with something drs all told them they were fine. No one beleieved them all said they were mad. Spent time in mental hosptial. I now believe they had thyroid problems. Which is what i have. They cursed me with this i rmember them saying somethig to me about if i had it i would know how it feels. They died. Killed themselves in the end i can understand the pain they were in now. I was too young to know what was wrong with them ans was jsut repeating what all the adults were sying. They said nothing was wrong and drs did too.
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I think a lot of misdiagnosis came about when the medical profession replaced their knowledge of clinical symptoms with Blood test results alone. Some patients have very disabling symptoms but in these modern times and if TSH doesn't reach 10 (in UK) we remain undiagnosed and can become mentally unwell due, I believe, to low T3 as well as GP telling us tests are 'normal' when we feel anything but normal.
Blood tests can have a use but they should be also accompanied by clinical symptoms the aim of which is to relieve them with proper thyroid hormones.
I have had Alopecia Areata three times in the past 8 years so I do understand how we feel when hair is lost. Mine has grown back but it has taken a long time and is much thinner than it was. The fact that I feel well now compensates.
Ensure that your vitamins/minerals are optimum too.
LDN meaning low dose naltrexone? If so, you can take LDN with T3. It helps some people lessen the auto immune attack of Hashimoto's. Virtually no side-effects. Am guessing there's something else with the same initials since doctors rarely recommend LDN & most know nothing about it.
Congrats on having a progressive doctor. Yes, I've been taking LDN for almost two months. Takes a while to see lowered antibody results, if there any. LDN is best taken at night. I started with a tiny dose & tittered up. T3 helped some with hair loss, but growing back slowly, which is common. Definitely try LDN. Hopefully, it will help. It's not an either/or choice. If it lowers antibodies, that will greatly help you.
I must email him then and ask for ldn too or maybe i should wait a few weeks to try thr t3 first. Did u start both together or one after the other. Will t3 not lower antibodies. Mine are now 91. I didnt want to try both at same time. Never heard it mentioned before. I have been back and forward ro my gp practice for 2 years. Insisting on tests. Ur thyroid is fine. I in sept did a provate test antibodies were 43. 4 gps refused. My own family member who is a dr. Said what u gettin all these fancy tests for. All said thyroid fine. 2 endos said thyrois not a problem. One ackowlwdged the raised anyibodies but felt it was iodone def that was causing my symptoms. Someone on this site recommended the dr who has confirmed hashimotos and is giving me the medication. I had to go to dublin to see him. I am in northern ireland. I am so grateful to the person on this site. Becausr i would be stuck and would have had no where else to go. At least i now have this last avenue to try. I am grateful to this dr. But will be overjoyed with him if it works and my hair thinnijg and shedding slows stops and hair grows.
Thyroid problems break your heart and spirit. I have lost 70 percent of my hair since feb 16. The hair i have in my head is quickly going he same way. As it hair everywhere else. So sparse and thin. I never brush my hair anymore. I tie is straight back and up in a bun. Out of the way. If i brushed it or let it down hair wouldnt stop falling out. My thyroid has affected my hair so badly all over my body
Why don't you want to take at the same time? There's absolutely no reason to take them both, as your doctor recommended. They do different things. I had to search for a long time to find a doctor who'd prescribe LDN, let alone one who even knew what it is. T3 is hormone replacement. T3 will not lower antibodies.
I dont know i was thinking that i wouldnt be able to identify the impact of each one and see what each one did if i took.them both together. I didnt know anythig about it at the time either. Some people on an ldn site say it caused hair loss for them as well i have just been reading about it this morning.
You shouldn't feel anything from LDN. You'll know if it's helping if your antibodies are lower in months compared to your current labs. LDN works slowly. It will also take a week to titer up to the recommended LDN dose. I've not heard it causing hair loss.
Your T3 dose will likely change over the following months.
Hi jump1 - congrats on having a progressive doctor! I have been on ldn for two months now, I started on 2mg but the sleep interruptions were too severe; now I am on 1 mg and all my niggly symptoms like joint and muscle pain are lessening. I have been told that I might have to reduce my T3 amount but that hasn’t happened yet.
I would introduce any supplement or medication or hormone one at a time, so that you know which one is at fault should you have any negtive reactions.
About the hairloss: I have been struggling with this off and on for thirty years. I have spent so much money and cried so many tears - now, at 53, I finally have good, healthy hair (and nails!). T3 has a lot to do with it, also nutrient dense food, and a supplement regime that’s based on testing, not guessing.
I am confident that with your doctor and this group supporting you you will succeed!
Thats good to hear about t3 and hair loss. My food is excellent all fresh. I eat plenty of it. My vitamin levels are all excellent. My thyroid is definitely causing my loss.
Hi - I just saw that you had h pylori and were treated for it. Is it possible that you don’t absorb the nutrients in your food for some reason? Damaged stomach or intestinal lining, or chronic inflammation for example? Low or out-of-balance sex hormones? Is it possible that the pain in your kidney area has to do with adrenal problems? Both high and low cortisol can cause hairloss, although when it is all over the body low cortisol is more likely.
Have you started T3 yet? I really hope it works for you!
Hi i got treatment for h pylori havent had the stomach pain since. I had hoped that with the eradication my antibodies would have went down. But they didnt they went up. I havent had the kidney pain in 2 or 3 weeks. I had the stomach pain the same length of time as the hair loss. Dr failed to diganose it. I had to. I have had all my vitamins and minerals tested because i yhough this was the problem or hoping it was. I wanst absorbing. But all of them have cone back good. I had lanugo hair on my face it is gone now (2 years ago at the start of all this i lost a stone in a week) but my hair is continuing to thin and shed. A uear of hair loss from head and body then 12 months ago it provressed to eyeborw and eyelash loss. I keep eating really healthy food and lots of protein. Supplemented witb floradix. Dr told me the other day folic acid is very high. So i am going to look for ir9n that doesnt have folci acid in it.
I have noticed that my fingers swell intermittnetly. My fingernaiks are ridged weak and break as bad as my hair.
I had cortisol tested in the morning blood by gp 3 monthd ago he said it is fine. I have had no stress for 2 years. Since this strted. Cut back on work and stress. No alcohol. Only worry is my hair/health.
I thought and hoped with the severe weightloss and lanugo hair especially with it goig away what alpeared to be after the h pylori was treated that it was to do with this. But my antibodies are now 91 from 43. I even thought the internittent swelking in my fingers and feet was to do with my cells healing from the sudden weightloss in jan 2016 and h pylori treatment in sept.
Do you have the actual numbers for the cortisol test? Docs just look for the extremes: Graves or Addison’s. Would you consider a saliva test for adrenal and sex hormones?
Have you looked at your blood sugar?
My fingernails improved so much since taking T3!
The intermittent swelling can be a sign of inflammation.
What test looks at blood sugar and i will tell you. I know i am not diabetic. Never heard of thr cell histamine whats it about. Ferritin 70. Sex hormones are ok. Nio i must ask for the cortisol. But i know i feel so much more relaxed than i did in early may 2016. Stress from work is gone. I dont have any of that anymore. I havent noticed the swelling in my fingers the last couple of days.
Are you taking thyroxine? Have you had your iron levels checked? That too can cause hair loss. I wouldn't take LDN and T3 together in case you get side effects and are unsure which is causing them. I would imagine that you need T3 and/or T4 first but I'm not an expert on LDN.
No dr in northern ireland or endo would admit there was anythig wrong with my thyroid. I ha to go to dublin to find a dr to prescribe. I asked for t3. He is going to try me on it for a few weeks first to see what happens. I have been saying for months that my metabolism had slowed down hair growing slower. Try 1 drug at a time. Really i dont want any drugs. But i will do whatever i can to stop my hair loss
Does t3 stop hair loss? And regrow hair? Or just stop the shedding. A derm on another site said it wouldnt make hair regrow. It would stop the shed and i would need hair treatments to make hair regrow
Thyroxine isn't a drug as such but a hormone that your body is struggling to produce. You are just replacing what your body lacks and without which you die.
I take LDN. I was recommended to take it in the morning as it can disrupt sleep. The most common side effect is vivis dreams for a short while whilst you slowly increase the dose. This was great for me as I hadn't noticed my dreams much for a while as my sleep quality was poor. The effect does face though. LDN is not going to affect hair loss though. This is more commonly affected by thyroid hormone levels being off, low iron levels or other things.
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