BBC news at 6pm Tuesday

[Gcart]

It’s made it big time, maybe things will change ?

Now my friends and family will understand, possibly !

Let’s hope it continues to roll out and patients will be heard by those who need to Listen 🙏🏼🙏🏼

[Gcart]

Forgot to say report on liothyronine and Concordia

[marigold22]

The BBC news added some information I did not know. That the final CMA verdict will be within one week. I think I've got that correct.

[Hennerton in reply to marigold22]

I think they said the final decision on T3 will be in a week.

[MMAndrea52]

I missed it. What did it say?

[Churchie]

Unbelievably good news - God I hope Jeremy Hunt was listening. It’s a scandal that pharm companies can get away with this when if affects people’s heath like this

[Gcart]

Hope someone will be able to post a link fraud I don’t know how to.

They cover with a full piece on Concordia overcharging , how it can be (liothyronine) obtained much cheaper in EU , a doctors spoke about the charge being reason for withdrawing it . It was very well put

[Gcart]

Snouts in the trough comes to mind

[Jazzw]

Has anything been said about them providing it more cheaply in future though? I mean, it's great that this has finally been recognised as a scandal, but if it doesn't result in T3 (liothyronine) being more readily available, then are we any further forward?

And wouldn't it be nice if the GP surgeries who carried on prescribing it, despite enormous pressure not to, got their money back?

[SlowDragon Administrator in reply to Jazzw]

That's a brilliant idea for GP's (like mine) who said, if you need it you should have it, despite CCG pressure to withdraw prescriptions

[Spareribs]

been a few posts about this news today - thank you for letting us know!

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

hopping over to iPlayer..... not there yet

bbc.co.uk/news/business-420...

[Jop123]

I can hardly believe this, I heard it on the radio. I had radioactive treatment over 20 years ago and have been on Levothyroxine ever since currently 125mg per day, although it has been as high as 200mg per day at times. For years I’ve been going asking GP why I’m so exhausted all the time, to be told I’m depressed and be put on anti-depressants, I’ve had about 4 different ones over the years none of which made any difference. Not one GP has ever mentioned this drug. I will be watching this very closely and asking my GP to let me try it at my next review.

[SlowDragon Administrator in reply to Jop123]

You need to get full testing - TSH, FT4, FT3, TPO and TG thyroid antibodies, vitamin D, folate, ferritin and B12

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven private blood tests can test all this if GP won’t

Many who have had RAI need small dose of T3 in combination with T4

[Jop123 in reply to SlowDragon]

Thank you for the advice. I will request these at my next appointment. I had the ‘normal’ tests done and vit D folate ferritin and B12 were all in Range I believe. I will get a copy of my last results and post on here later. Thanks again SlowDragon.

[SlowDragon Administrator in reply to Jop123]

In range is not same as optimal when on Thyroid replacement

Most/many need

Vitamin D around 100nmol

Ferritin half way in range

B12 near top of range

Folate at good level

[marigold22 in reply to Jop123]

Hi, welcome, have you sought out the Thyroid section after hearing about the T3 Fiasco? We all did think there were probably thousands of hypo's suffering on T4 (levo) who didn't know about us. The national coverage has certainly alerted suffering Levo medicated folk. I've just been thinking - - in fact, T3 is the thyroid hormone the body is able to utilise easily and quickly; why should anyone be on the synthetic fake T4?

[Tattyhead53]

Watching this with interest as I have just been prescribed this drug on a 3 month trial. I think it's criminal to rip us ( patients, NHS and taxpayers) off like this. 6000% price increase. From £4.50 per month to £287 utter profiteering in my view.

[AliF]

Hugh Pym ( BBC Health Editor) report is on the 10 o’clock news for those who missed it at 6.

[AliF in reply to AliF]

Sadly it was dropped minutes before transmission. Shame