What is APS: How would I know if I have APS or... - Thyroid UK

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What is APS

rayhanalopa profile image
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How would I know if I have APS or Hughes Syndrome?

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rayhanalopa
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If you Google Hughes Syndrome & APS you can click on tests for this.

Try NHS choices APS - Hughes syndrome.

Why do you ask? Have you had a DVT?

Are you under a Rheumatologist or any Consultant? Have they done the blood tests? You can ask them for the results or apply to the Hospital's admin department for a copy of your medical records or just all your blood test results.

APS

quote

" Antiphospholipid syndrome sometimes known as Hughes syndrome is a disorder of the immune system that causes and increased risk of blood clots . . . . . "

rayhanalopa profile image
rayhanalopa in reply to Mary-intussuception

I have suffered three early miscarriages in a row. I'm hypo and autoimmune positive. Searching in Internet, I came to know that APS can be reason for that. My physician has not suggested me any diagnosis. As I'm from an underdeveloped country, I'm afraid if my doctors know about this issue.

rayhanalopa profile image
rayhanalopa in reply to Mary-intussuception

I've not done the blood tests for APS.

I don't know about DVT and I'm not under any rheumatologist.

I have suffered three early miscarriages in a row. I'm hypo and autoimmune positive. Searching in Internet, I came to know that APS can be a reason for that. My physician has not suggested me any diagnosis. As I'm from an underdeveloped country, I'm afraid if my doctors know about this issue.

Mary-intussuception profile image
Mary-intussuception in reply to rayhanalopa

Hi again Rayhanalopa

Sorry to hear of your losses, they must have left you devastated.

How are you feeing now? Are you better physically.

I, too, suffered miscarriage.

Also have a history of circulation problems including - phlebitis and thrombophlebitis. However, I was never told it was APS.

I've had some of the Antibodies tested in more recent years and believe they were OK then.

As advised, you could try the appropriate forum.

It is good that your doctor has diagnosed your Hypothyroidism and tested your Thyroid Antibodies though ?

A Medical Consultant queried my Thyroid function and circulation problems within a short time after my miscarriage. However, after he left, no one else picked up on it. It was many years later that I was eventually diagnosed with Hashimoto's and Hypothyroidism. xx

rayhanalopa profile image
rayhanalopa in reply to Mary-intussuception

Hi Marry intussuception

Thanks for your advice. I'm physically well, but mentally - I can't assert that.

I have joined and asked question in the forum as advised.

Have a good day. ☺

Mary-intussuception profile image
Mary-intussuception in reply to rayhanalopa

X

helvella profile image
helvellaAdministratorThyroid UK

rayhanalopa,

I suggest you go to the dedicated forum here on HU!

healthunlocked.com/hughes-s...

But do feel welcome back for your thyroid issues. :-)

rayhanalopa profile image
rayhanalopa in reply to helvella

Thank you

Is your hypothyroidism optimally medicated? It is very important as far fertility, pregnancy & the development of the foetus is concerned. There are many references if you do a Google search, but a couple of quotes (not referenced as you'll be able to find many of your own) are:

"In the Journal of Medical Screening, researchers in a large study of 9,400 pregnant women demonstrated that pregnant women with hypothyroidism had a second trimester miscarriage risk four times the risk of women who were not hypothyroid."

"According to a 2008 study in the Indian Journal of Medical Sciences, hypothyroidism has a statistically significant relationship with recurrent pregnancy loss in the first trimester."

"During the first trimester, however, pregnant women with autoimmune thyroiditis (AITD) carry a significantly increased risk for miscarriage compared to women without AITD, even if euthyroid." *

If your hypo isn't being well medicated, that would be a key issue to address.

* I think the last quote suffers from poor sentence construction, and I've taken it to mean "pregnant women with AITD, even if euthyroid" rather than as written "compared to women without AITD, even if euthyroid".

rayhanalopa profile image
rayhanalopa in reply to

Hi NoMoreT3

Your reply is very informative.

I was not given any medication for treating Hypothyroidism. My doctor has advised me to do the tests again after three months. During my last pregnancy(which I miscarried in the seventh week), I was taking Allystrenol INN 5mg (thrice a day) and Aspirin BP 75mg (once a day) according to my doctors prescription.

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