What is the point of the wait and see approach - Thyroid UK

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What is the point of the wait and see approach

Jump1 profile image
20 Replies

Can someone please explain what is he point in the wait and see approach. If antibodies show you are headig towards hashimotos. Tsh is struggling. But other results are within range. If once you are hreadig towards hashimotos and by all accounts your thyroid struggling cannot be reversed naturally according to many on this site.

Why will you not get treatment. If you have symptoms and they are not improving but getting worse. And bloods show the above. I do not understand what they are waiting for.

If you had symptoms of breast cancer and tests showed you had the precursor cells to it they remove it.

Why are they not treating it? This is such a nightmare.

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Jump1
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20 Replies
startagaingirl profile image
startagaingirl

Hi - things like viruses or infections can cause inflammation of the thyroid and hence raise TSH. The current protocol is to do a 2nd test 3 months after the first with raised tsh to ensure that the raised tsh is genuine and not due to one of these issues. The exception is where anti-bodies are actually positive, not simply heading that way.

Jump1 profile image
Jump1 in reply tostartagaingirl

Well i havr several tsh all above 2. Most recent 3.32. Just doagnosed with h pylori had treatment retested 4 weeks later. No infection anynore. Gastritis suspected as well because of infection caused by stress and weightloss i believe.

My peroxidase antibodies are 9 above the level.

So what does that mean in your eyes. Do you think i could improve or thats me. Hashed

Clutter profile image
Clutter in reply toJump1

Jump1,

TSH 3.32 is within range. Some doctors think it would be pragmatic to treat with Levothyroxine before TSH is abnormal and the patient is symptomatic but NHS won't usually diagnose hypothyroidism until TSH is over range. Read Dr. Toft's comments in thyroiduk.org.uk/tuk/about_...

Thyroid peroxidase antibodies over range are positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it eventually causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies. Supplementing 100-200mcg selenium will also help support the thyroid.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

Jump1 profile image
Jump1 in reply toClutter

Thanks just read it. It is just wrong though not to treat and watch it destroy the person. They wouldnt do it if it was cancer or some other illness. They would treat it. The more i read the sadder and more hopeless i feel.

Clutter profile image
Clutter in reply toJump1

Jump1,

I don't disagree with you. I really can't see the point in waiting until autoimmunity causes abnormal levels when symptoms are evident and the antibodies are predictors that this will happen.

shaws profile image
shawsAdministrator in reply toJump1

Was your blood test taken at the very earliest time, fasting. If you were taking thyroid hormones you'd allow a gap of 24 hours between dose and test.

If you had it test later in the date, your TSH is lowered.

shaws profile image
shawsAdministrator

This is a far better way to diagnose and treat patients. You may have to do it yourself if you can. We have private labs which will do those tests the NHS wont.

thyroiduk.org.uk/tuk/testin...

Jump1 profile image
Jump1 in reply toshaws

Sept 17 @ 9-30 fasting tsh 3.32

Jan 17 @3.33 - tsh 2.07 (not fasting)

May 17 @3pm tsh 2.17(not fasting)

Oct 16 @3.19 tsh 5.24 (not fasting)

June 16 @8:40 tsh 3.18 (I think fasting cannot remember)

I am on no medication

shaws profile image
shawsAdministrator in reply toJump1

You need to have a full thyroid function test which consists of T4, T3, Free T4, Free T3 and thyroid antibodies. There is a special offer today from one of our labs if you were able to do so. T3 is the driving force of the hormones being the only Active one. T4 is an inactive hormone and has to convert to t3.

healthunlocked.com/thyroidu...

TSH is no good on its own and another link from TUK.

thyroiduk.org.uk/tuk/testin...

Jump1 profile image
Jump1 in reply toshaws

I have had all the other tests done as well

Test Date August 2017 @9-30am Thyroid Stimulating Hormone

3.32miu/L0.27 – 4.20

Free Thyroxine 16.6Pmol/l12.00-22.00

Total Thyroxine 106.5Nmo/l59.00-154.00

Free T34.69Pmol/l3.10-6.80

Reverse T316Ng/dl10.00-24.00

Reverse T3 ratio19.0815.01-75.00

Thyroid Antibodies

Thyrogloubin Antibody19.400Iu/ml0.00-115.00

Thyroid peroxidise antibodies43.6Iu/ml0.00-34.00

I am being retested in 5 weeks by endo. I got tested for h pylori on the 23rd of Oct 17. it says I am clear so he wants to wait 5 weeks from now to test again

does the company you are talking about have clinics in Northern Ireland. medichecks no longer have them here, I don't like the finger prick test.

shaws profile image
shawsAdministrator in reply toJump1

You can phone both Medichecks and Blue Horizon. They also can give a hospital in your area who will draw blood for you.

Jump1 profile image
Jump1 in reply toshaws

medichecks told me they do not have currently any in Northern Ireland. Blue horizon said the same.

shaws profile image
shawsAdministrator in reply toJump1

That's a shame. Would the nurse at your surgery draw blood for you?

Jump1 profile image
Jump1 in reply toshaws

No chance, they will hardly do the bloods they are meant to and even then half the time they do not do it correctly.

shaws profile image
shawsAdministrator in reply toJump1

You have my sympathy as you are not able to get the tests you need.

Jump1 profile image
Jump1 in reply toshaws

yes it is hard, at the moment my only choice is to get the endo to do them, which costs more. and the gp refuses, everytime they talk to me, there is nothing wrong with you everything is normal.

they refused to give me a copy of my bloods they had taken last week. gp told the guard dog that he wanted to know why I wanted all my notes. I told the guard dog he didn't need a reason I wanted them and am entitled to them. (my gp only works 2 days she wasn't in - this other gp has seen me twice and spoken to me on the phone twice, my own gp has never met me - before this I was never in the doctors-never every near them) they then said that they had 21 days to give them and again he wanted to know why. so I am waiting 21 days to ring again to check they are ready for collection.

I was complaining to the practice manager and receptionist I know the GP was the problem but of course they weren't able to take a call or come to the phone. The gp's in my practice are useless, I am going to move or check about moving to a new practice not sure it will be any better or if they can take me but am going to try once I get the results. I am sick of that make gp, and the others actually.

told me that the stomach had nothing to do with the immune system when I asked would the suspected gastritis/ulcer and h pylori infection be the cause of all my recent infections and that is why my immune system was weakened. imagine a gp telling you that, they must be used to talking to fools.

Well, you might get run over before they have to spend money on treating you. No funding points to speak of for thyroid, but if you get cross and worked up enough they can say you're depressed and get extra funding points for that. Cynical? Me?

Jump1 profile image
Jump1 in reply toAngel_of_the_North

yeah, I know I am depressed and I know why, because of my hair loss no other reason, if the cause of it was treated and resolved, I would have no depression and would be the happy person I was 2 years ago. No chance I am under any circumstances taking antidepressants I know what's causing me being down and I know the only thing that will make me happy is treatment to fix it. it is also neither age related or hereditary. My mum and aunts and granny all full heads of hair and I am the only one of my mother's daughters with their colour and thickness and style (straight as a rush wont curl with the weight). well not anymore since this started

Angel_of_the_North profile image
Angel_of_the_North in reply toJump1

Never tell that you are depressed or answer enough of their questions (you can find the depression and anxiety questionnaires on the internet) in such a way as to be classified as depressed or anxious If you do, you'll never be taken serioulsy again. You are cross, fed up and disappointed that your hair hasn't improved - not depressed.

Jump1 profile image
Jump1 in reply toAngel_of_the_North

yeah, I never said to my own gp that I was depressed or anxious, but I did to this new one on the phone, he is going to check all my nutritional values and vitamins. my own gp wouldn't do this. there is no way I am going into my gp to say I am depressed, I know they will say give her a prescription for anti-depressants, then say there is nothing wrong with me it is all in my head. The more I see of doctors the less I like them. The do not think deep enough. they want an easy life, they don't like to solve problems and try and find solutions. their get out of free clause is there is nothing wrong with you go away your bloods are normal. they didn't like me diagnosing myself with the hpylori - he said to me everything is fine, oh except of course for the h pylori infection and nearly everyone has it. they need a good dose of illness that cannot be resolved themselves.

truth is it does get me down, because I am fed up, cross and disappointed by it, but I have to try and struggle on. socially I have become more reclusive because of it, I am angry that it happened to me.

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