Still seeking better QOL

[annie123]

Diagnoised with Graves’ disease almost 5 yrs ago had RAI went on levothyroxine . Because my get up and go has gone I have been exploring the net for self help ways to improve my health .

Main problems are overwhelming fatigue, ache all over feel like 90 yr old instead 60 yr old , have lots hot flushes , palpitations are getting worse despite being on beta blockers have put two stone in weight on . All my blood results are fine .

Have a very nice GP but he does not appear to know much about Graves’ disease . He asked for more information when I asked if there were any othe medication that may help. I posted information from the lancet Anita how some do not get on with Levo and waiting to hear back . Reluctant to make an app as do not have much faith.

Have been looking to go private but have yet to find a good dr in the south west England . Hoping to have the Have a test to rule out a genetic reason .

Feel like just ordering T3 but concerned about safety .

Is there anyone who knows where you can order T 3 as I feel at least it would be worth a try . I am aware it is not just a matter of popping a pill that thaw right strength is important to get the balance .

Must add was on 100mcgs Levo cut it down to 75mgs to see if it improves my symptoms .

I am semi retired love my work two days a week but find I need to rest on my days off .

Feel there must be a way I can improve my symptoms . Must add all my bloods are normal they refused to check T 3 .

Would appreciate any wise words or contacts .

Kind regards Annie

[greygoose]

Who said your results are fine? Your doctor? What would he know! And, when he says 'normal', all he means is 'in-range', which is not the same as 'optimal'. Do you have the actual numbers? Is so, post them here, with the ranges, and let's have a look. We don't believe in 'normal' and 'fine'.

[annie123 in reply to greygoose]

Will post them as soon as I can locate them . Been tidying up !!!

Kind regards annie

[annie123 in reply to greygoose]

Hi grey goose

Found them all normal the only one to do with thyroid is TSH 1.07mU/L this appears to be in the ref range . What do you think ?

Thanks Annieb

[greygoose in reply to annie123]

It's good. But meaningless. Once you're on thyroid hormone replacement, the TSH is irrelevant. You need at least the FT4, better still, the FT3.