Dawny: I forgot to mention i am from australia... - Thyroid UK

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Dawny

DawnEnoka profile image
9 Replies

I forgot to mention i am from australia and have hashimoto's and am looking for a cheaper but reliable option to buy t3 online x

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DawnEnoka
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9 Replies
Blue_Bee profile image
Blue_Bee

Hi Dawny, I’m from/in Australia too. If you have a prescription for T3 WITH authorisation from your GP or specialist (they phone up and do the authorisation for you, then mark that fact on your script, when they give it to you) then it only costs about $38 for... about 60-80 tablets (? don’t have my script in front of me) but anyway, it’s not dear. Why do you need to go via the US...?

DawnEnoka profile image
DawnEnoka in reply toBlue_Bee

Hi Blue Bee

My doc has been giving me compounded t3 at 6mcg. For 1 month it costs around $30 and they are capsules. I was thinking if i could get tablets in a higher dose i could cut up my doses with a pill cutter so i guess i am trying to cut costs. I am also taking natural dessicated thyroid but my t4 is high but when i lower my dose my metabolism slows right down so my doc and i decided on the t3 as well as a lower dose of n.d.thyroid but as i said its quite expensive. Is it tetroxin you are taking as i have since seen that whilst researching and it may be a better option?.

Blue_Bee profile image
Blue_Bee in reply toDawnEnoka

Cost is a real issue with Hashimoto’s, I empathise. Yes Dawny, I’m currently taking Tertroxin only $38.80 for 100 20mcg tablets. If you are getting the T3 compounded, it sounds like maybe your doctor has prescribed the sustained-release T3 and that IS expensive. A GP/Naturopath prescribed that to me and that’s when I got my initial, dramatic relief from brain-fog and depression. But it cost a fortune - the consultation AND the compounded sustained release T3 - so I began looking for a more conventional and affordable source. T3 is a legal drug in Australia (not banned from the public health system like in the UK) and so I figured I should be able to get it safely, legally and affordably prescribed and monitored by a specialist. I asked my GP but he said he’d be learning about it at the same time as me, so he referred me to the GP/Naturopath. Since then I’ve found an excellent, knowledgeable Endo who said the compounded slow-release T3 doesn’t work as well as the “instant” T3 and the compounded version is a total rip-off cost-wise. Hence the authorised script for T3 at $38.80 for 100 20mcg tablets. You will easily halve the tablets with a pill-cutter, and someone here suggested a Stanley knife works even better if you need to 1/4 the tablet, and voila! 5mcg. $&@“<|¥!!! It just shouldn’t be this hard. My current endo once made a comment about getting T3 (or was it NDT...?) online from god-knows-where, well I did some browsing and it was INTIMIDATING! And I really don’t think it’s legal in AU to import undeclared prescription drugs. So I gave my endo a minor blast! Why on earth was he saying it’s easy to buy online - that is just pure rubbish. And how dare a medical person suggest a woman with an increasingly common LIFELONG thyroid disease go shopping in unknown places when there are perfectly legal options here in AU that endos are able to supervise; with involvement of their patient of course. Hmmm... I know you can tell I’m cranky - outraged actually - by the thought that you feel you have to go online — when there are good options here in AU. I don’t know why the patient should have to bare the physical and financial risks because their doctor won’t listen to and take responsibility for caring for their patients. The best doctors DO. Okay, I just read that back... maybe the sustained release is exactly what you need (we are all different here) but if you are wanting the T3 pills, they are not sustained release and you can buy them here for 2cents a mcg... legally....anyway, is it the sustained release T3 you are taking?

DawnEnoka profile image
DawnEnoka in reply toBlue_Bee

Im not sure if the compounded t3 was s.r. but it did nothing so i wouldnt be surprised. I have made an appointment with my g.p today to try get the tertroxin.

My natural dessicated thyroid is from Thailand and it has been awesome for me. I researched for a long time looking for a more natural form of thyroid medication as apart from compounded that is all we can get here ( i think lol). I found this amazing website called ' stopthethyroidmadness' amongst many others and there are many people on the ndt from Thailand that are doing well. I am too but my body isnt good at transferring t4 to t3 so im planning to lower my ndt dose and keep my t3 higher. I havent ever had a weight problem with my hashis or depression mine has been sluggish digestion dry skin terrible fatigue and antibodies in the 1000's. My antibodies have come down alot since ndt and lots of other symptoms have improved but that t4 conversion is a problem. I take iodine and many other supps and eat clean but i know there is room for much improvement with my digestion. As soon as i lower my ndt because of high t4 my digestive issues (constipation ) comes back and the tiredness so im hoping my doctor will understand and help 😊

Blue_Bee profile image
Blue_Bee

I hope your GP does understand and prescribe and monitor Tertroxin for you accordingly. So much cheaper, and a safe, consistent supply. Interesting about the NDT from Thailand.... hmmm... I’m about to start prescribed, locally compounded NDT only (and yes, it costs a bomb!!) tapering coming off 80mcg of daily Tertroxin over a month while the NDT kicks in. I also have issues with T4 to T3 conversion, or maybe it’s an absorption issue I’m beginning to think. Gut health and all that. I’m Coeliac and have been gluten free for 15 years... but maybe still have some form of malabsorption. I also have off the charts antibodies; in the multi-1,000s. Ah, so many things to juggle hey? All for the holy grail of a symptom-free (and affordable!) life :-) All the best with it Dawney.

DawnEnoka profile image
DawnEnoka in reply toBlue_Bee

No luck with the tertroxin. My doctor was willing but its not covered on the pbs because i havent been on levo and it has to be documented that i had negative symptoms and cant take it....dammit.

She gave me a private script but its $74.00...might have to do it.

Anyway thought id update you. Take care of yourself x

Blue_Bee profile image
Blue_Bee

I’m really glad you did Dawney, we have to look out for each other :-) Good that you have a supportive doctor, tick! Many here seem to struggle to get the medical support they need, so that’s great. Is there any reason why you wouldn’t try T4 i.e. Theroxine / Levo?

DawnEnoka profile image
DawnEnoka in reply toBlue_Bee

When i was first diagnosed with hashis the doctor i was going to at that time refused to treat me ( usual story)..so i had to research for myself and amongst other sites i came across the one i mentioned to you before ' stopthethyroidmadness ' and i found them very informative and they were saying that alot of people (not all) do better on ndt. The lady that runs the site has hashis and her followers too. They give information and advice from people there who are on ndt and where to source it from ,so instead of leaving my hashis to just worsen i decided to self medicate and im so glad i did. But saying that if i couldnt get my ndt anymore then i wouldnt have a choice but id try and keep to a very minimum dose. My daughter (22) also has it. She developed it 6 months after giving birth (post partum thyroiditis ) her tsh was 32 she is on levo and is fine now.

Blue_Bee profile image
Blue_Bee

I’m so glad to hear your daughter is fine on Levo - by far the best solution if it works. Standard, ubiquitous, inexpensive. I really wish it had worked for me :-/ Yep, I know the stopthethyroidmadness website, got the book, T-shirt etc. and find it very helpful, encouraging. It seems unfair that you couldn’t get standard T4 treatment for your Hashimoto’s initially (how come? TSH “normal” or...?) and now you can’t get PBS NDT because you haven’t tried the standard T4 treatment....what??! I guess an option is to trial the T4, but... if you’re feeling well then I’d be sticking to what works for you. Frustrating though!

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