THYROID S - WHAT DO YOU TELL THE DOCTOR? - Thyroid UK

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THYROID S - WHAT DO YOU TELL THE DOCTOR?

loolah profile image
7 Replies

Good Morning lovely people! I wondered whether anyone could advise me please. I am self medicating on Thyroid S - and it is BRILLIANT! I haven't felt this well since the onset of Hashi's. I haven't been on Thyroxin for about 6 months now. My doctor did refer to me a consultant and he prescribed Armour, I took this for about 3 months but it didn't really help me. Having joined HealthUnlocked, I learned an awful lot and then decided to try Thyroid S. I haven't looked back!! I have a routine health check with the nurse tomorrow, she will take some bloods too, including checking my TSH. I am a bit worried....do I tell them I am self medicating or tell them that I am still taking Armour. I wouldn't mind betting that my TSH is suppressed and they won't like that as it doesn't match their text book information. As I mentioned earlier, I haven't felt this good in 5 years so I don't know if they will be pleased for me or not pleased, as in their minds, my TSH should be about 2-3 (I think that's what they like to see, can't remember now). Umm, I just would be very grateful for some help with telling them "the right thing/what they want to hear". Thank you so much everyone, so grateful to you all xx

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loolah
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7 Replies

In my experience, few doctors like it when patients self-medicate...so, I'd just tell them I'm still on Armour since a doctor prescribed it for you, thus providing you with an "alibi" for the suppressed TSH...if on T4 only, doctors will inevitably conclude you are overmedicated and need to cut back.

I have not even told my hormone doctor (who prescribes NDT for me) that I now take Thyroid-S...BTW, I agree it's a great drug! I feel much better on it than I ever did on Armour or Erfa (both of which I tried after they were reformulated).

shaws profile image
shawsAdministrator in reply to

p.s. NDT isn't a 'drug' but replacement hormone :)

shaws profile image
shawsAdministrator

If your doctor takes a blood test he will probably be puzzled by blood test, but maybe not as they only check TSH and T4 usually.

Or you can say that you have sourced your own thyroid hormones and are doing excellently well with relief of all symptoms.

If he mentions anything untoward about NDT (younger doctors may not be aware of it) you can give him a print-out of the following. You can also say that a woman in Scotland who was on the point of suicide as she was told there was nothing else other than levothyroxine after her thyroid gland was removed - she found a doctor who prescribed NDT and her husband still has a wife and her son a mother. She is well and now has a case in the Scottish Parliament for not allowing flexibility of thyroid hormone replacements other than levo. Why should we be restricted to something that hasn't improved our health?

We cannot let untruths rule our lives and you have had an immense change of health since taking it. We are doing nothing wrong in sourcing our own.

thyroidscience.com/Criticis...

Clutter profile image
Clutter

Loolah,

If your GP is aware you were taking Armour there is no need to mention that you have switched to Thyroid-S which is also NDT, just another brand.

Take Thyroid-S after your blood draw. Your GP may think you are overmedicated if TSH is suppressed but as long as FT3 remains within range you aren't overmedicated.

loolah profile image
loolah

Thank you very much Clutter. You are right, it takes someone on here to put things in perspective and enable you to see the wood from the trees! I appreciate all the helpful comments and support! :) xx

dina7 profile image
dina7

I think I'm lucky with my GP who seems very accepting of the fact that I'm on NDT, does all the blood tests I ask for, writes to me after to tell me I'm over-replaced ... and we both live happily till the next time.

loolah profile image
loolah

That sounds fabulous dina7! I think you are in a minority but how wonderful. :)

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