Thyroid UK
82,839 members97,872 posts

Thyroiditis

Hi all

I have been diagnosed as a thyroiditis patient for the past 7 years . It was started as hyper and within few months changed into hypo . My TSH level was almost constant for few years with 50 mcg of levotroxyne. But suddenly TSH level became 0.105 microu/ml and the doctor reduced the dosage to alternate 50/25 mcg of medicine. At that stage I was experiencing all the problems of hyper like rapid heartbeat etc. Can someone give me an insight on this problem?? Does this indicate that my thyroid is functioning normally???

9 Replies
oldestnewest

Rapid heart beat can also be sign of being under treated.

Can you post actual results and ranges

For full evaluation you need TSH, FT4, FT3, TT4, TPO and TG antibodies, plus vitamin D, folate, ferritin and B12 tested

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results

1 like
Reply

Thanks Slow dragon

My TG antibody is negative and all other tests were done only inthe first couple of years . As I have shifted to this part of the world , they are mainly focusing on TSH level . Thanks for the advice and Iam planning to do all other tests.

Reply

Your doctor is a naughty boy! He should not be dosing by the TSH alone.

What has probably happened is that you've had another Hashi's 'hyper' swing. Like the first time you were tested and it was 'hyper', high levels of thyroid hormone (if the tested them!) and low TSH.

What happens is that the immune system attacks the thyroid, and kills off a few cells. As they die, they release all their stock of hormone into the blood, causing FT4 and FT3 to rise dramatically, which causes the TSH to drop.

The excess hormone is then used up, or excreted, and levels go down. At one point, as the hormone runs out, you will of course, have 'normal' - or euthyroid - levels. But, that does not mean that your thyroid is working normally again, because the levels will continue to drop, until you are hypo again.

Sorry, but it's not the good sign it appears to be. It's just the way the disease progresses. :(

1 like
Reply

Thank you so much for the response . The second hyper happened after a flu episode . Now the TSH levels have reached 1.7. Any other suggestions please??? As in this part of the world , the endo is more concerned about the related problems like cholesterol, diabetic tendency etc . Moreover my Tg antibody is negative.

Reply

Oh. Well, when you said 'thyroiditis', I presumed you meant Autoimmune Thyroiditis. I don't know of any other reason you would swing from hyper to hypo. What about your TPO antibodies?

Cholesterol is not a problem in and of itself. But, high cholesterol is a hypo symptom.

I think the best thing your can do is post all your lab results, so we get a better idea what is going on. Or is TSH all your doctor tests? If so, then we're never going to find the problem, I'm afraid.

2 likes
Reply

What about TPO antibodies and TSI antibodies?

Reply

Both TPO and TG antibody are negative.

Reply

If it happened after a flu, it might be a viral Thyroiditis. If you will read about viral Thyroiditis, also called Subacute Thyroiditis, you will learn that it first makes you hyper then hypo (this hypo phase can be temporary or may become permanent). It takes long time to know.

If your both antibodies are negative, I would suspect you don't have Hashimotos, the auto immune Thyroiditis.

But since you have been on levothyroxine, you should be tested for TSH, FT3 and FT4. Get them done and post your results. Greygoose is right in calling the doctor naughty boy, even if it's a girl 😎

Reply

Yes, have a look at subacute thyroiditis which can come on the back of a virus. Usually involves a hyper stage, followed by hypo and then normally recovery to 'normal' levels

Reply

You may also like...