Normal TSH but many hypo symptoms

[Gillybabe48]

I have written here before. My daughter has many hypo symptoms. Putting on weight, constipated, always cold with night sweats. Prickly eyes and brain fog and losing hair. Low temperature in the morning. However she has had two TSH tests the first was 0.98 and the recent one was 1.49. The doctor refuses to do t4 as he says he is quite happy with TSH. She is 42. Also her rib bones hurt and she has a lumpy soreness in throat when swallowing. Like a lump.

[greygoose]

TSH doesn't tell it all. But, doctors don't understand that. Is she in a position to get private labs? FT4, FT3 and antibodies? Have a look at private tests on here:

thyroiduk.org/tuk/testing/p...

[Inaquandary]

I agree with Greygoose. Get private tests. Especially vitamins and iron etc. Ideally she should be referred to an ENT to see what the "lump" in her throat is. Best of luck x

[greygoose in reply to Inaquandary]

It's more than likely her swollen thyroid pressing on her oesophagus, Lindsay, which an ENT wouldn't necessarily pick up on.

[Inaquandary in reply to greygoose]

But it seems to be the "process" GPs go through... To rule out other things. To put the camera down and have a look?

[greygoose in reply to Inaquandary]

Yes, I know, but that's probably because they understand so little about thyroid.

[Inaquandary in reply to greygoose]

You don't need to tell me that! 😀

[Welchy1 in reply to Inaquandary]

Hi there, I have Hashimotos and have recently posted about a 'lump' sensation in my throat. It seems that Hashi's suffer from low stomach acid which ironically is a cause of acid reflux...So I took to the internet and was advised Apple cider vinegar diluted in water relieves it when drunk. So I did and so far the 'lump' sensation has gone! I'm booked in for an MRI on my thyroid next week any way in case it's coincidence and to rule out pressure from a swollen thyroid... it wouldn't hurt to try the cider vinegar... it worked for me within 30 mins..

[SlowDragon Administrator]

If paying for private tests get vitamin D, folate, ferritin and B12 tested to

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting. This gives highest TSH and most consistent results

[AZWobbly]

I agree with all responses above. A friend of mine had a growth on his thyroid and was hypothyroid. He was put on levo. Some time later, the growth was removed and his hypo went away like magic. No need for meds. It sounds like hypo to me, and really reminds me of my friend's experience. He had a lump on his throat as well. BTW, thyroid problems are famous for "false negative" results. And TSH alone is NOT enough. Your daughter may need a new doctor. I did. My first was dumber than dumb.

[activelazy in reply to AZWobbly]

Can I ask what the growth in case of your friend diagnosed as? What other symptoms and how long it lasted?

[PattiTilden in reply to activelazy]

Hi, I had to wait for a call back from him to get more detail. What happened 20 years ago: his blood tests came back with uptake too high, so he was put on levo for 5 years. He could feel a lump on his throat, so they removed it and pathology revealed that is was a benign cyst. He had gained some weight, but did not recall other symptoms. Remember that this was 20 years ago so even his memory is a little fuzzy about this. Uptake what? He doesn't know, and just took the med. I know that they can do a needle biopsy on a thyroid lump, as well as much more blood work to find out exactly what is happening with her. Good luck and let us now what happens!

[activelazy in reply to PattiTilden]

Thank you for replying. Uptake too high means - iodine uptake too high. Thyroid gland produces thyroid hormone and for doing so it needs iodine.

Iodine uptake is inversely proportional to hormone production. If there is too little hormone production, uptake will be high and vice versa. Iodine uptake (by the thyroid gland) is checked using a radioactive scan after administering a small dose of radioactive medicine.

My case was different and uptake was too low. I suffered a rather less common condition called Subacute Thyroiditis. It usually resolves on its own. I don't know if it has, in my case. I am on a trial of thyroxine for last 7 months. It probably helps but not sure about correct dose.Its a long story ....and is still being written.😁