Normal TSH but many hypo symptoms: I have written... - Thyroid UK

Thyroid UK

136,965 members160,561 posts

Normal TSH but many hypo symptoms

Gillybabe48 profile image
12 Replies

I have written here before. My daughter has many hypo symptoms. Putting on weight, constipated, always cold with night sweats. Prickly eyes and brain fog and losing hair. Low temperature in the morning. However she has had two TSH tests the first was 0.98 and the recent one was 1.49. The doctor refuses to do t4 as he says he is quite happy with TSH. She is 42. Also her rib bones hurt and she has a lumpy soreness in throat when swallowing. Like a lump.

Written by
Gillybabe48 profile image
Gillybabe48
To view profiles and participate in discussions please or .
Read more about...
12 Replies
greygoose profile image
greygoose

TSH doesn't tell it all. But, doctors don't understand that. Is she in a position to get private labs? FT4, FT3 and antibodies? Have a look at private tests on here:

thyroiduk.org/tuk/testing/p...

Inaquandary profile image
Inaquandary

I agree with Greygoose. Get private tests. Especially vitamins and iron etc. Ideally she should be referred to an ENT to see what the "lump" in her throat is. Best of luck x

greygoose profile image
greygoose in reply to Inaquandary

It's more than likely her swollen thyroid pressing on her oesophagus, Lindsay, which an ENT wouldn't necessarily pick up on. :)

Inaquandary profile image
Inaquandary in reply to greygoose

But it seems to be the "process" GPs go through... To rule out other things. To put the camera down and have a look?

greygoose profile image
greygoose in reply to Inaquandary

Yes, I know, but that's probably because they understand so little about thyroid.

Inaquandary profile image
Inaquandary in reply to greygoose

You don't need to tell me that! 😀

Welchy1 profile image
Welchy1 in reply to Inaquandary

Hi there, I have Hashimotos and have recently posted about a 'lump' sensation in my throat. It seems that Hashi's suffer from low stomach acid which ironically is a cause of acid reflux...So I took to the internet and was advised Apple cider vinegar diluted in water relieves it when drunk. So I did and so far the 'lump' sensation has gone! I'm booked in for an MRI on my thyroid next week any way in case it's coincidence and to rule out pressure from a swollen thyroid... it wouldn't hurt to try the cider vinegar... it worked for me within 30 mins..

SlowDragon profile image
SlowDragonAdministrator

If paying for private tests get vitamin D, folate, ferritin and B12 tested to

If you can't get full thyroid and vitamin testing from GP

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting. This gives highest TSH and most consistent results

AZWobbly profile image
AZWobbly

I agree with all responses above. A friend of mine had a growth on his thyroid and was hypothyroid. He was put on levo. Some time later, the growth was removed and his hypo went away like magic. No need for meds. It sounds like hypo to me, and really reminds me of my friend's experience. He had a lump on his throat as well. BTW, thyroid problems are famous for "false negative" results. And TSH alone is NOT enough. Your daughter may need a new doctor. I did. My first was dumber than dumb.

activelazy profile image
activelazy in reply to AZWobbly

Can I ask what the growth in case of your friend diagnosed as? What other symptoms and how long it lasted?

PattiTilden profile image
PattiTilden in reply to activelazy

Hi, I had to wait for a call back from him to get more detail. What happened 20 years ago: his blood tests came back with uptake too high, so he was put on levo for 5 years. He could feel a lump on his throat, so they removed it and pathology revealed that is was a benign cyst. He had gained some weight, but did not recall other symptoms. Remember that this was 20 years ago so even his memory is a little fuzzy about this. Uptake what? He doesn't know, and just took the med. I know that they can do a needle biopsy on a thyroid lump, as well as much more blood work to find out exactly what is happening with her. Good luck and let us now what happens!

activelazy profile image
activelazy in reply to PattiTilden

Thank you for replying. Uptake too high means - iodine uptake too high. Thyroid gland produces thyroid hormone and for doing so it needs iodine.

Iodine uptake is inversely proportional to hormone production. If there is too little hormone production, uptake will be high and vice versa. Iodine uptake (by the thyroid gland) is checked using a radioactive scan after administering a small dose of radioactive medicine.

My case was different and uptake was too low. I suffered a rather less common condition called Subacute Thyroiditis. It usually resolves on its own. I don't know if it has, in my case. I am on a trial of thyroxine for last 7 months. It probably helps but not sure about correct dose.Its a long story ....and is still being written.😁

You may also like...

Swollen thyroid, normal TSH, Hypo Symptoms

been experiencing hypo symptoms for over two years now and in that time I have had two TSH tests...

How can I have so many hypo symptoms when my TSH, T4 and T3 are all within 'normal' range!

therapy. She refused NDT on the basis it is not approved by RCP or nice. Told me it wasn't safe....

Many hypo symptoms but normal labs?

33) has what might be symptoms of hypothyroidism: hair loss in outer corners of eyebrows, hair loss

Suppressed TSH but hypo symptoms

and had every hyperthyroid symptom, it was hell. (tsh 0.04 FT4 18 (9-19)) I have been trying to...

Hypo symptoms normal results

hypothyroidism and recently have been getting more and more hypo systems. I currently take 150...