I am prescribed t3.
My tsh came back 101
Now i am wondering why my tsh is high.
Any ideas?
I am scared they will take t3 off me.
I think its because of b12.
They dont test b12 anymore.
I had some vials and went got inj.
Also anyone know why t3 is so expensive?
Hey Lisbeth1, hang in there. I think for others to give better info more blood values are needed. Ft3, tsh, both values and the normal range. Plus any other blood values that might help. It could be something simple like your t3 dose is too low or more complicated like b12 or iron, selenium, vit d or zinc levels interacting with your thyroid.
Someone should correct me if I'm wrong but thyroid will lower b12 but i dont think b12 impacts the thyroid. Kind of a one way street.
Do you have hashimotos?
T3 might be cheaper with a different brand or ordering from another country.
Hi RobinAnn,
You're right... but we have to remember that the hypothyroid condition impacts general overall health due to the lack of absorption (low stomach acid) of nutrients -- which is especially detrimental to the need to maintain adequate B-12 levels. "The body stores 2 – 5 mg of vitamin B-12 and half of the stored amount can be found in the liver.
However, about 0.1% of the vitamin B12 in the body is lost every day. Therefore, there is a need for constant supplementation."
progressivehealth.com/b12-t...
"There is a high (approx 40%) prevalence of B12 deficiency in hypothyroid patients. "
ncbi.nlm.nih.gov/pubmed/186...
"Hypothyroidism can compromise your ability to absorb vitamin B-12. An infection of Helicobacter pylori bacteria may also interfere with gastric secretions and hinder B-12 absorption.[9]
The USDA recommends B-12 supplementation for people at risk of deficiency because it’s more easily absorbed than B-12 from food sources.[11]"
globalhealingcenter.com/nat...
Personally, I use methylcobalamin as it is already converted. Cheaper B-12 products, such as cyanocobalamin must be converted before it is bioavailable. I think the difference is only a few dollars.
Hope this helps!
Hey Lizbeth1
Do you have a copy of your blood test results with the reference ranges that you can post? Is it possible that a decimal point has been misplaced. Eg 10.1 or 1.01
How much T3 do you take and for how long have you taken it as T3 has a tendency to lower and suppress your TSH.
T3 is very expensive as up until recently there had been only one supplier licensed to supply in UK. They saw they had the monopoly and got very, very, greedy so inflated to cost to ridiculous levels. That is why the NHS want to stop prescribing it despite the fact that patients really need it.
If your doctor has told you that B12 is no longer tested then that's an outright lie so they may also telling porkies about the TSH. Always get a printed copy of the test results.
Hi Singoutloud, you took the words out of my mouth! I first thought to ask if she could check the decimal point but then I realized it's UNITS, UNITS, UNITS!
Her TSH was measured in nmol/L, not our usual mIU/L. 101 in mol/L is about mid range - I am not too familiar with that scale. So it's not 101 on the usual scale, which would be very serious. I am afraid I do not have access to the conversion equation, if I find it I will post it.
I've checked on a number of different sites, and apparently for TSH, there is no difference in the units - or to put it more accurately, to convert TSL levels between the two units of measurement, the multiplier is 1. Other conversion charts simply omit TSH from the list, presumably for the same reason.
Yes, you are right. After I looked for a formula in many conversion tables to follow up on my post, I could not find one! I think mIU/L is pretty much universal. Maybe lizabeth could post a pic of the original source report. I think a TSH of 101 mIU/L is something worth researching. lizabeth lives in the UK so the blood tests were not taken in some far off land which maybe does things differently. Interesting.
Three questions in order to help.
1) How are you feeling on the T3 dose you are on? Can you cope with a full day? Is you mind clear so you can think or is it foggy?
2) What dosage of T3 are you on? How many tablets and when do you take them (most people have to spread it through the day) ?
3) How long have you been taking T3? When were you first diagnosed with an underactive thyroid?
As everyone has said, we need your full results if possible to help best but understand you may not have them at the moment.
You don't mention that you're feeling ill? 101 is a very high TSH, and generally with a TSH like that you'd be very sick, in bed most of the day, struggling to walk, etc. I have had a TSH this high, but I've had a thyroidectomy, it would be unusual to gave a TSH like this if you've got any thyroid at all.
But that is if the TSH system is working properly. If you don't feel as sick as that, you should definitely go in for further testing and see an Endocrinologist. TSH is produced by the pituitary, and its supposed to respond to the amount of hormone that reaches it in your bloodstream. But the pituitary can go wrong and make far too much TSH.
It depends on the dose you take and how long you have been taking it. Have you had your two thyroid antibodies tested? NHS usually only do one. So you may need to do a private test to get them both. bluehorizonmedicals.co.uk/t...
Opinion of the Bio Chemist regarding T3 testing!
Help understanding results
Suppressed TSH but still under medicated?
What are Optimal levels for someone on T3 and T4 combination?
