Hi, I have been on Levo for over a year now, currently on 100 mg, doctor not interested at all, every time blood comes back it's normal regardless of dose. Still gaining weight, tired, down, puffy eyes, hair loss and need help.
Please can anyone recommend a good endocrine doctor, I am based in Oxfordshire but happy to travel 😊 Thank you 😊
Welcome to our forum and your dogs are lovely and enjoying the sun.
First thing to do is get a print-out from the surgery of your latest blood tests, with the ranges.
Did you have the test at the very earliest possible, fasting (you can drink water) and did you allow a 24 hour gap between last dose of levo and the test? If not you need a fresh blood test. If GP wont do so you can get a private one from our recommended labs.
You need TSH, T4, T3, Free T4, Free T3 and thyroid antibodies.
B12, Vit D, iron, ferritin and folate if you've not had these vits/minerals before.
If your TSH isn't around 1, you most probably are not on the correct dose of levothyroxine. When doctors say 'normal' they are only referring to the ranges. We don't want 'normal' we want optimal. That is a TSH of 1 or below with Free T3 and Free T4 towards the upper part of the range. The latter two are rarely taken but we can get a private test.
If you email louise.roberts@thyroiduk.org.uk she has a list of recommended doctors/endos.
Go and see the best man for the job dr Peatfield he is in Surrey and does private consultations pm me I’ll send you details !!
Dr Peatfield, although very well known for his expertise and help, is unable to prescribe due to relinguishing his licence as he was being pursued by the Authorities as he would prescribe NDT for his patients. Just like Dr Skinner was also pursued (he though died through a stroke his patients believe was caused by complaints by the medical profession for treating according to symptoms and prescribing what he thought was appropriate).
However, Dr Peatfield can definitely advise and he has helped many people.
Shaws you are absolutely correct in what you say, but the person wanted to know private endo didn’t ask about meds !! 🤣🤣😂😂
But at least if he knows what he is dealing with meds can be easier to obtain
Anyway dr Peatfield is still the best man for the job he will also look at holistic approach diet and takes everything in to consideration which most nhs endos skip over !
I did give details above for accessing the name of private Endos.
If you have not read the book by Diana Holmes "Tears Behind Closed Doors: Failure to Diagnose a Thyroid Condition" is an excellent read. After she saw Dr P she then worked closely with Dr Skinner.
I believe you can get a copy (loan) from Thyroiduk.org.uk.
Do as shaws says before spending on private endos.... get your results and put them on here then peeps can see what's going on. Private bloods can be done from home via finger prick from recommended labs from thyroid uk website. Medichecks and blue horizon do all advised bloods for jut under £100 though they both often have special offers on.
And your dogs are gorgeous
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