Not sure if posting in the right place! - Thyroid UK

Thyroid UK

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Not sure if posting in the right place!

Chrissy profile image
25 Replies

I haven't used this site for quite awhile and not sure where to post this, sorry.

A few weeks ago I experienced nausea, vomiting and bloating and for a few days after I had a horrible taste in my mouth that I can only describe as having eaten too much meat (I hadn't). I thought it was some sort of food poisoning. However it has happened again in the last couple of days and I am sure this time that it is not to do with anything I have eaten.

If it is relevant I have a large gallstone and was treated for breast cancer 5 years ago.

I wonder if anyone else experienced these type of symptoms?

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Chrissy profile image
Chrissy
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25 Replies
Marz profile image
Marz

Hi Chrissy ! - gosh is it really 4 years since your last post ? - how time flies.

Sorry to hear you are feeling poorly. When people are Hypo they can also suffer with LOW stomach acid which prevents good digestion in the stomach. This may be the cause of the taste in your mouth. Have you tried taking ACV - Apple Cider Vinegar - with the mother in it. Sometimes they have it in Toko or 1001 😊 Start with a teaspoon in water before meals.

Maybe your gall bladder is inflamed and playing up - but then you didn't mention any pain .....

What dose of Levo are you on ?

Hope you feel better soon.

Chrissy profile image
Chrissy in reply to Marz

Hi, Marz, life has been rather odd over he last 4 years!

I have some lower stomach pain mostly caused by wind I think. It feels like I am carrying a rock inside me!

Dr in UK took me off of Levo. So at the moment nothing.

Will try the ACV thank you.

Marz profile image
Marz in reply to Chrissy

It can also be caused by Low T3 if you are not on any meds. Thyroid hormones are needed in every cell of your body - with the most T3 receptors in the brain and the second highest amount in the gut/immune system. If T3 is low then simply there is not enough to go around and things begin to go wrong. Bit like trying to spread a teaspoon of butter onto a whole loaf 😊

You could try being gluten free and see how you go.

Think it is time for another test and this time do the Frees rather than the Totals.

TSH - FT4 - FT3 - TPO - Tg - and B12 - Folate - Ferritin - VitD. Mention my Greek name and you will get a good deal !!

Why did your UK doc stop your Levo ? If your discomfort continues I would see a doc. Ring me if you're stuck ......

SlowDragon profile image
SlowDragonAdministrator in reply to Chrissy

Would suspect it's because you have stopped taking Levo.

When hypo we get low stomach acid, low vitamins and digestion goes haywire

Why has levo been stopped, how long not taken any

Suggest a blood test asap

Chrissy profile image
Chrissy in reply to SlowDragon

Thanks I will get that sorted. Stopped taking Levo about 2 years ago .....

Chrissy profile image
Chrissy

The Dr said that, after tests, I didn't need it. I had tests last year, in Kalyves, and they said results normal. I will scan them to you ...

Marz profile image
Marz in reply to Chrissy

Thanks - will take a look 😊 Normal is as you know an opinion and not a result ... You will know from reading this forum that understanding test results is very poor within the medical world ..... !

SlowDragon profile image
SlowDragonAdministrator in reply to Chrissy

But your results are only "normal" because your taking hormone replacement, you can't stop taking them.

Sounds like you got a dr with no idea how thyroid replacement works

Chrissy profile image
Chrissy

In my world as well!!

Chrissy profile image
Chrissy

I think I am pretty much gluten free at the moment. I am doing the blood sugar diet (I am not diabetic) so no bread, potatoes, pasta or rice .......

Marz profile image
Marz in reply to Chrissy

Being gluten free is easy here in Crete - with so many fresh foods around. Wishing you well with the Blood Sugar diet .... have you sent your results over to me ? Cannot see them in my Inbox on the computer .... :-)

Chrissy profile image
Chrissy in reply to Marz

I have just mailed them over to the 3 email addresses I have for you! One of them must be right :)

Marz profile image
Marz in reply to Chrissy

Yep got them - Your thyroid is struggling to produce T4 and as a result your T3 is low in range. VitD needs to be around 60 - so hopefully you are supplementing. You could start a new thread with just the Thyroid results and VitD and ask for comments .... I am popping out now ! I could do it for you later :-)

Chrissy profile image
Chrissy

Not yet as I am trying to catch up with some work. Will get to it as soon as I can.

Mintychristine profile image
Mintychristine

Your ailments are valid and common I have RA and Hypothyroidism been struggling with ibs for yrs now Anyway it changed I was jaundiced and ignored stomach problems came to head with anaemia had the tests its leaky gut with blocked billiary ducts it makes total sense now I have a enlarged knotted bowel

But Im relieved coz its easy txt

Go to your drs I thought it was low on my priority list so skirted round even saying my ibs wasn't that bad!! Your gallstone is causing problems and needs attention it drags you down tiredness whatever you eat cripples your stomach I dont enjoy meat anymore it gives me a bloated heavy stomach.

Just go Chrissy explain your ailments if you get it removed your stomach will feel completely different and the procedure are so easy now xxx

Chrissy profile image
Chrissy in reply to Mintychristine

Thank you. Off to Doctors on Monday. It's the taste in my mouth that is the worst; makes me feel like I am rotting from inside!!

Marz profile image
Marz in reply to Chrissy

With a large gall stone in the bile duct - your gall bladder will not be able to secrete the appropriate amount of bile. Bile neutralises fatty acids.

Hope the doc offers action rather than pills and potions 😊

You can live without a gall bladder - I do - so many other Hypos do too ....

jamesal0 profile image
jamesal0

Coeliac disease - maybe a blood test for antibodies.

Mintychristine profile image
Mintychristine

Chrissy Im as dumb as rocks compared to some people on here but your gallstone will cause your stomach problems Have your dr's not said you need it removed. Its so easy now . Pain low in your stomach will cause your symptoms My blocked billiary ducts is killing me everything you eat but I'm learning what goes down easy I'm doing gluten-free porridge no meat or fat The worst thing is I'm getting constipation and its agony but taking it day by day until they flush my ducts

Your stomach is affected with Immune disease is what I've learned. And unfortunately the GPS aren't that knowledgeable My Rheumatologist is better. Gp's seem terrified of us but persevere it'll be worth it Keep nagging untill they listen to you xx

CSmithLadd profile image
CSmithLadd in reply to Mintychristine

It has been known for decades that hypothyroidism causes gallstones as cholesterol levels are high (cholesterolemia) when hypothyroid.

"Serum hypercholesterolemia in hypothyroidism may cause bile to supersaturate in cholesterol. A direct consequence of cholesterol supersaturated bile is reduced motility [13], depressed contractility [14], and impaired filling [15] of the gallbladder, giving rise to prolonged residence of bile in the gallbladder. This may contribute to the retention of cholesterol crystals, thereby allowing sufficient time for nucleation and continuous growth into mature gallstones."

So, if you're hypothyroid and have gallstones, it makes no sense to have your gallbladder removed. First, try getting adequate thyroid hormone:

"Earlier studies with subclinical hypothyroid patients have demonstrated that a positive effect on changes in the cholesterol level, cardiovascular effects, or neuromuscular symptoms may be achieved with early replacement treatment with thyroxine [10, 11]. It has also been reported that gallstones have dissolved after initiation of thyroxine therapy [12]. It is possible that thyroxine replacement therapy is not sufficient, or not sufficient at all times of the day, in all patients to maintain normal sphincter of Oddi function, causing the formation of CBD stones."

hindawi.com/journals/hpb/20...

The common “solution” to gallbladder problems is surgery. There are over 750,000 cholecystectomies annually in the US.

Dr. Joseph Mercola doesn’t pull any punches in describing how this currently works in conventional medicine:

“I believe it is nearly criminal what traditional medicine is doing to our public when it comes to managing this problem. It is RARELY ever indicated to remove someone’s gallbladder. If one ignores warning symptoms and does not address the reasons why their gallbladder is not functioning properly, then the disease can progress to the point where the pancreas is inflamed or the gallbladder is seriously infected and may have to be removed to save a person’s life. However, it is important to have a proper perspective here. Nearly ONE MILLION gallbladders are removed every year in this country and it is my estimate that only several thousand need to come out.

So, not only are surgeons removing these organs unnecessarily, but in their nutritional ignorance they are telling patients that their gallbladders do not serve any purpose and they can live perfectly well without them. This is a lie.”

Advanced Functional Medicine nutritionist, Tom Malterre adds, “Unfortunately, 10-33% of people who get their gallbladder taken out never resolve their symptoms of gallbladder disease; and in fact those who have their gallbladder removed may suffer from a whole new set of symptoms like fat malabsorption and vitamin deficiencies after surgery.”

wellnessrepair.com/what-you...

If that's not enough to make you hold on for dear life with your gallbladder... for those without a gallbladder who have not experienced Sphincter of Oddi Dysfunction (SOD), I want you to know it is one of the most painful experiences ever. If you have stones in your gallbladder, removal of the gallbladder merely causes more dysfunction in your body.

SOD is not a pleasant experience, whatsoever. Call it hell on earth. If you don't have a gallbladder, this can happen to you. Believe me, I know all about it. It's no fun whatsoever.

biotherapy-clinic.com/sphin...

"Both bile and your pancreatic juices flow to your small intestine through a common duct that is opened and closed by a round valve. The valve is a muscle called the sphincter of Oddi. ... Healthcare providers aren't sure why SOD (Sphincter of Oddi Dysfunction) happens. But you're most at risk for this condition if you've had your gallbladder removed."

urmc.rochester.edu/encyclop...

Keep your gallbladder! It's not the problem. Hypothyroidism is! Get proper treatment to become euthyroid and all will be well throughout all the functions of your body. Most all gallbladder stones are made by the cholesterol your hypothyroid body is having difficulty because of thyroid dysfunction that causes the bile to slow down and form stones.

However, if your gallbladder has been removed, there are important things that most conventional doctors (and surgeons) never tell their patients. My gallbladder was removed forty years ago. I never knew these things until recently by doing my own research. It has answered all my issues. Just illustrates how conventional medicine is still in the Dark Ages. Dyfunctional? Remove it! Unreal how barbaric we human beings can be.

wellnessrepair.com/what-you...

The article above is an excellent one to read to get a full understanding of what the gallbladder does and exactly why it should be protected from those who don't have clue how the body works and how every organ is there for a reason.

Hope this helps!

Hyburn profile image
Hyburn in reply to CSmithLadd

Very helpful thanks.

CSmithLadd profile image
CSmithLadd

Yes. It's most likely bile you are tasting. Been there, done that. But back then, as my gallbladder was removed when I had just reached my twenties, I didn't know the cause of its dysfunction and how it could have been saved. The dysfunction was no fault of the gallbladder.

Gallstone formation has been connected with hypothyroidism for a very long time. Most conventional doctors are ignorant of this fact as attested to the plethora of unnecessary gallbladder removals. Gallbladder dysfunction (causing cholesterol stones) is usually due to the sluggishness of bile, due to a thyroid that is not getting the nutrients its needs to enable all of its peripheral functions at optimal levels. The conversion of Thyroxine/T4 into the active thyroid hormone Triiodothyronine/T3 is the foundation for overall good health. The T3 makes it way to the tissues and cells of the body and keeps all systems functioning at the required pace for optimal health. But when the body is lacking T3 in its cells, this causes hypothyroidism which slows down the functions of the body. That includes slowing down gallbladder function.

ncbi.nlm.nih.gov/pmc/articl...

Gallstones form as a result of too much cholesterol in the bile. Hypothyroidism can cause this to happen because any function in a hypothyroid body can be slowed down, as well as the fact that hypothyroidism causes high cholesterol levels. The bile and bile salts moving slower than optimal through the gallbladder (and changes in amounts of each) changes the consistency of the bile. This is how stones are formed. Stones are mostly made of cholesterol and also a combination of bilirubin and cholesterol. None of this is a fault of the gallbladder itself. Removing the gallbladder does not change the dysfunction that will ultimately affect other organs as hypothyroidism remains uncontrolled.

"In the majority of cases, gallstones are precipitates of cholesterol. Cholesterol is a nonpolar molecule that is kept in solution in the bile by bile salts and phospholipids. Gallstones form when the level of cholesterol in the bile exceeds the capacity of the phospholipids and bile salts to keep it in solution. This might occur in someone with hypercholesterolemia (high circulating levels of LDL cholesterol), or in an older person in whom bile salt synthetic enzymes have become less active."

courses.washington.edu/conj...

To correct the problem of a sluggish gallbladder, ample active thyroid hormone T3 must be replenished in all the tissues and cells of the body. For that to happen, if given T4 (Thyroxine), it must be able to access the specific nutrients in sufficient quantities to facilitate the conversion of T4 into the active thyroid hormone T3 (Triiodothyronine). It is T3 that regulates the heart beat, body temperature, warmth, and ensures well-being in every system functioning of the body. It is T3 that allows every system to keep pace in a healthy manner and not to become dysfunctional with sluggishness and therefore harmful to one's health.

gallbladderattack.com/blog/...

Hope this helps!

Healing Hugs!

Chrissy profile image
Chrissy in reply to CSmithLadd

Thank you.

Hyburn profile image
Hyburn in reply to CSmithLadd

Thanks for explaining this. Had gallbladder remove in 1983. Been hypo 30+ years. Recent private tests revealed I have Hashimoto's which I have always suspected. Don't convert T4 well as have DIO2 gene. Have recently switched to T3 only.

CSmithLadd profile image
CSmithLadd in reply to Hyburn

Excellent. Most hypothyroid individuals have trouble converting T4 to T3 due to the lack of nutrients needed for that conversion. Doctors rarely look for the nutrient angle and most were taught only of the DIO2 gene as being an issue that prohibits thyroid hormone conversion.

I'm very happy you have found the solution for you.

I just added a link at the bottom that you should read. My gallbladder was removed forty years ago and no one ever told me about what I needed to know in order to be sure to digest the fats necessary for absorption of fat-soluble vitamins A, C, E and K. That article should be helpful to you. I certainly hope it is.

Knowledge is definitely power.

Healing Hugs to you, Hyburn.

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