LDN?: Has anyone tried this medication? This is... - Thyroid UK

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LDN?

t3rcam profile image
10 Replies

Has anyone tried this medication?

This is interesting

lowdosenaltrexone.org/

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t3rcam profile image
t3rcam
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10 Replies
Rapunzel profile image
Rapunzel

I have :( It's a complete faff to source/use 💦 😷 💉 and made no appreciable difference once the placebo effect had worn off. We are all individuals and it may make a difference to you.

Things that have worked for me include comprehensive blood tests of the type you can arrange via TUK thyroiduk.org.uk/tuk/testin... hang on for a 'Thyroid Thursday' for a larger discount; Magnesium mineral oil spray - I use Better You (UK); Krill oil and sublingual B12; a blood pressure monitor; a Geratherm Basal Mercury Free Thermometer but most of all the wise and wonderful people who contribute to this site and those behind the ITT campaign change.org/p/itt-campaign-g... :)

nightingale-56 profile image
nightingale-56 in reply to Rapunzel

Apart from the LDN Rapunzel I second and agree with all you have said about your 'tools of the trade' and information given by a lot of kind people on this site. t3rcam thanks for posting about LDN. I also find that Oil of Evening Primrose helps with aches and pains and hair condition.

I've just ordered a small amount and am going to try it, but I hasten to add it's really more in the hope of lessening my need for painkillers for my chronic lower back pain, rather than hoping it'll sort out my thyroid. It certainly is interesting and I'm looking forward to trying it out.

t3rcam profile image
t3rcam

Thanks for your replies ladies. Rappunzel, yes I have the 'tools of the trade' and have had blood and saliva tests done as recommended by TUK. I am also a member of the Rt3-adrenals group which is also very good. When you say that the LDN you used was a faff to source and use - what do you mean? Was it the liquid form you used? How much did you take? How long did you use it for? Sorry for all the questions I am very curious.

jadzhia, I would be very interested to know how you get on, will you post your outcome here?

phoenix23002 profile image
phoenix23002 in reply to t3rcam

t3rcam... ldn has been a Godsend for MS sufferers and many cancer patients use ldn to help boost their immune system. You need to get it in a form that lets you adjust dosage as it is recommended to start off low and slow.

The 50 mg tablets are very versatile. You just dissolve them in 50 ml of distilled water. Then 1 mil of water = 1 mg of ldn and you store this in the fridge. Discard it if not used after 60 days or so. Many folks start off on .5 or 1 mg of ldn. You take it at night at bedtime. Some report sleep disturbances for the first week or two.

If one can't tolerate the nighttime sleep disturbance (vivid dreams, nightmares), you can try taking it in the morning. Hold on low dosage then increase each week or so, especially if you are sensitive to substances. Don't exceed 4.5 mgs per day/nite.

Rapunzel profile image
Rapunzel in reply to t3rcam

I used tablets and distilled water (there's just as much faff getting that - the dispenser at Boots looked at me like I was mad when I asked for it ) then there's the syringes to draw up the appropriate mls of ldn as described by phoenix.

I got up to 4.5mls/day, kept at it for 6 months and then gave up in one of my ever bubbling fits of pique. Life's too short with all the other cr*p I put up with, was my take. I hope it treats you kind. Good luck x

G2G2 profile image
G2G2

I just started LDN tonight. Happy to post updates. Fingers crossed.

t3rcam profile image
t3rcam in reply to G2G2

I would love to know how you get on, fingers crossed for you!

Lucieb01 profile image
Lucieb01 in reply to t3rcam

I use liquid and I get it from dicksons chemist Glasgow and get my script from a doctor in Glasgow

G2G2 profile image
G2G2

Thanks! My doctor said LDN has helped some patients, but not all. Four days & counting. The Rx came with a hand-out stating cautions for people on thyroid supplementation who may need to lower meds. Here's hoping. I had a thyroid antibody test before beginning to see if LDN makes a difference.

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