How have I only discovered this website?
I'm 34 and have been suffering with an interactive thyroid since having my daughter almost 17 years ago. I was put on levothyroixine. Only a small dose 25
I was young and internet wasn't really available. The doctors didn't give me any information on it so I didn't really understand how important it was to take everyday until about 7 years ago. I was booked into a private hospital to have my kidney removed and the nurse asked if I had brought my levothyroixine with me and I said no I don't really take it. She kind of frowned and said you must take this medication every day but didn't say anything else on it. She just made sure I took it every day in hospital
So after that I was taking it and having regular blood tests and they kept upping the dose but even still I didn't realise how important it was. One night about 4 years ago I was in a club and I got talking to a random guy who had suffered most of his life with his thyroid. Well.... this man taught me more about my condition in 2 hours than my doctor did in all those years. So all those years of suffering just because I wasn't educated enough and wasn't told how important it was to take the medication!!
They still haven't stabilised it and I'm now on 250 every day. The past 3 weeks I've felt terrible. Depressed, extremely tired, can't lose any weight, cramps in my legs, dry skin, always feeling cold. This is how I used to feel when my dose wasn't high enough
I've got to have another blood test on Monday and my gp said they'll probably up my dose again
I always thought that 250 was the maximum and that was classed as full replacement
So just when I thought I had it nailed and understood it all I'm now back to square one and quite confused