6 years and still in the dark: I've been... - Thyroid UK

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6 years and still in the dark

becholt profile image
4 Replies

I've been suffering with a chronic rash on my face for a little over 6 years now. I't got progressively worse this last year. I've been to various GP's and derma and they have just treated me for Rosacea. I really do not believe it's Rosacea. It does flare up and down but it NEVER goes completely. The only time it ever cleared up was once when I was really poorly with flu. I've tried elimination diets over the years and sometimes it calms down other times it doesn't. There doesn't ever seem to be a consistent result or light bulb moment. I suffer terribly with my digestion - chronic bouts of constipation then followed by agonising diarrhoea :( As well as the face rash I get hives and itchy skin a lot. GP's given me strong antihistamines but its making me so angry - I want to know WHY I need them. They make me feel like a hypochondriac and, while I'm not a vain person, this rash and sometimes pimples on my face has diminished what little self confidence I had. Sorry for the long post, but I'm really feeling so desperate.

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becholt
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greygoose profile image
greygoose

Are you being optimally treated for your thyroid? I had terrible rashes on my face until I was diagnosed and treated - and on a high enough dose!

humanbean profile image
humanbean

I had rashes on my face and elsewhere when my nutrient levels were low. Getting thyroid hormone levels up high enough helped as well.

The fact that the rash disappeared when you had flu makes me think the problem is caused by an autoimmune condition of some kind. While your immune system was busy attacking the flu virus it couldn't attack your skin as well.

Rather than taking strong anti-histamines, have you considered going on a low histamine diet? Googling for "low histamine diet" could give you some ideas.

histamineintolerance.org.uk/

histamineintolerance.org.uk...

The foods to avoid eating (high histamine foods) are given on the second link.

becholt profile image
becholt

Yes! That's what I've told a few GPs and they have just said that it was a coincidence that it went when I was poorly. Thanks for that I'll look up a low histamine diet :)

SlowDragon profile image
SlowDragonAdministrator

Are you on Levothyroxine? Do you have a Thyroid condition? If so do you have Hashimoto's (high antibodies) also called autoimmune thyroid disease

Sounds like rash could be gluten related, especially if you have Hashimoto's

If you have Hashimoto's then hidden food intolerances may be causing issues, most common by far is gluten. Changing to a strictly gluten free diet may help reduce symptoms and eventually start to lower antibodies. Very very many of us here find it really helps and can slowly lower antibodies, improving symptoms

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

Hashimoto's very often affects the gut, leading to low stomach acid, low vitamin levels and leaky gut.

Low vitamins that affect thyroid are vitamin D, folate, ferritin and B12. Important to test these. If they are too low they stop Thyroid hormones working. Have these been tested, if not ask that they are. Always get actual results and ranges.

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