I had a very interesting email exchange with a Nobel Peace Prize winning endocrinologist. Long story. He noted that based on my description of symptoms and my combo of elevated rT3, slightly elevated TPOab, and consistently log FT3, that combination is known as Non-Thyroidal Illness. He said my TYPE 1 history (I've had Type 1 diabetes since age 5, I'm now 38), that that combination of labs is quite common as is the NTI is such presenting patients.
He stated that there is no agreement in whether people who have NTI should or shouldn't be treated with thyroid medication. Needless to say, I feel defeated. It's like they can tell me what it's NOT, but no one has told me what these symptoms and labs are. I'm not going to just take these symptoms and lay down. I can't. I have life to live. I figure if my FT3 is as low as it is, I'll take my chances with the NDT and see whether it helps. Because the not doing anything protocol, I can't....not with strong symptoms like what I have been having.
Have you heard of NTI? What do you think??
Thank you all. Seriously, you all have been the ONLY source of empathy and actual help. And I have the utmost respect for all of you. Thank you.....