Newly diagnosed: Hi I have been on thyroxine 5... - Thyroid UK

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Tiredofitall profile image
12 Replies

Hi I have been on thyroxine 50 micrograms for 1 month . Today I have been unable to do anything for lack of energy am very tearful and just feel awful. My doctor wants me to have a second blood test in a month. This exhaustion is so debilitating and I swear I feel like I am gaining a pound of weight daily. I also have to take vitamin d . Is anybody else experiencing same symptoms

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Tiredofitall
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12 Replies
Nanaedake profile image
Nanaedake

You need to have a blood test every 6 weeks and increase the dose. If you doctor has not booked you for a blood test then contact the surgery and make a booking. You can get your results online so you don't have to wait. You must have your blood test as early as possible in the morning and wait until after you've had the blood test before taking your levothyroxine to get the best result. Are you taking your levothyroxine on an empty stomach and waiting one hour until you eat or drink (water is ok)?

You are going to feel somewhat emotional until you are on the right dose of levothyroxine, it's a common experience. You'll be alright once you get the dose right. Do check vitamin levels as suggested because without optimal vitamins your levothyroxine will not work properly.

Tiredofitall profile image
Tiredofitall in reply toNanaedake

Thank you for replying yes I have taken tablet first thing in morning usually around 7 am . I had to go back to bed and slept again till 10 15 . Yawned all day Sat so long it's a wonder I haven't developed bed sores.

Nanaedake profile image
Nanaedake in reply toTiredofitall

Well, you've still got your sense of humour so all is not lost!

Tiredofitall profile image
Tiredofitall in reply toNanaedake

I feel my sanity is questionable at the moment though. I can only describe as if I am on time delay when having any conversation.

Nanaedake profile image
Nanaedake in reply toTiredofitall

Yep, that's part of it. It'll come right in time.

shaws profile image
shawsAdministrator in reply toTiredofitall

Thyroid hormones run our whole metabolism, that's why we feel so exhausted as the vital Active hormone, T3 is too low. T3 is the only hormone required in our receptor cells.

T4 is inactive and has to convert to T3, so when first diagnosed our dose is slowly increased every six weeks until we are symptom-free and feel well. Many doctors stop increasing once the TSH is somewhere in the normal range. The aim should be a TSH of 1 or below and FT3 and FT4 towards the upper part of the range. It is a slow journey.

Your doctor should also check B12, Vit D, iron, ferritin and folate.

I feel your pain. Going through the exact same thing at the moment all in the same time frame too. Hopefully being on here will help :) sorry I can't offer advice

AngieAsh profile image
AngieAsh in reply to

Me too. Been on levo almost 6 weeks. Today I got woken up by the window cleaners at 9am. 10.30 after breakfast I was so tired I decided to shut my eyes for a nap, woke up at 2pm when the postman came and still had trouble staying awake. Now it's 12.45 am and I'm tired but can't fall asleep😕

We'll get there, the helpful people here assure me it is just a necessarily slow process to build up the dose safely.

in reply toAngieAsh

Here's to hoping. I'm up now, will go to work soon until 2-3, then will crash as soon as I get home. I feel so sorry for my kids at the moment! I may as well not be here :(

Tiredofitall profile image
Tiredofitall

Thank you so much for your reply . I hope to get doctors app tomorrow. Knowledge is very helpful

Tiredofitall profile image
Tiredofitall

Thank you I will make sure I do that

Tiredofitall profile image
Tiredofitall

Thank you for your advice . I would not of known to do this

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