anyone been on Liquid Levothyroxine ? - Thyroid UK

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anyone been on Liquid Levothyroxine ?

Ineedmythyroid profile image
5 Replies

Hi,

has anyone been on the liquid form of Levothyroxine, and how has your health been on that? I'm currently on NDT (which was prescribed in another country) as I'm allergic to Levothyroxine but since NHS won't pay for the NDT my doctor has suggested the liquid form of Levo.

Love to hear some feedback before I speak to her next as I have no idea if it's any good or not (and she has no idea herself).

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Ineedmythyroid
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shaws profile image
shawsAdministrator

This is from the link below:-

CONCLUSION:

The use of LT4 liquid formulation compared to tablet resulted in a significantly higher number of hypothyroid patients who maintained the euthyroid state in a 12-month follow-up period and a reduced variability in TSH values.

It doesn't tell you how the patients felt on taking the product.

ncbi.nlm.nih.gov/pubmed/247...

Scazzoh profile image
Scazzoh

If you try liquid levo, you won't be getting the active. T3, T2, T1 and calcitonin which NDT provides. Levothyroxine only contains T4, the storage hormone. So if you don't convert the T4 to T3 properly, you may notice a difference in your symptoms.

Ineedmythyroid profile image
Ineedmythyroid in reply to Scazzoh

Hmmm, yes I was afraid this may be the case. Can't say I like to go backwards when it taken me so many years to get to where I am. I HAVE to find a private doctor then or just buy it from overseas myself. grrr

Scazzoh profile image
Scazzoh in reply to Ineedmythyroid

You could find a private doctor. Contact Thyroid UK for a list. Or, do what a lot of us do on here and self-medicate. I've sent you a private message with where to get NDT from. You are on it already, so you know about dosing. I don't know about T3 currently, so if you want information about that, put a new post up. T3 is cheaper than NDT.

Lolo2803 profile image
Lolo2803 in reply to Scazzoh

Hi scazzoh sorry to bother you i had my thyroid removed 2 years ago and been suffering since with levothyroxine... Can you pleaz pm me where i can get NDT watever the price. I am a single mother of 2 and the struggle is too much... Thanks a lot.

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