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Kla88 profile image
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Hi can someone private mail me where I could purchase NDT? I'm currently on 100levo, does nothing much for me. Just want to explore my options can't imagine taking levo for the rest of my life.

Thanks in advance

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Kla88
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Clutter profile image
Clutter

Kla88,

Can you post your most recent thyroid results and ranges? Might as well check you are optimally dosed before deciding Levothyroxine isn't working.

Kla88 profile image
Kla88 in reply toClutter

Thanks for replying, it's not so much that's it's not working the lab ranges are ok at the minute, tsh 1.88 and t4 18, however I feel like since I started taking it I've a whole range of new symptoms, some days it's like having a hangover.

I haven't had my t3 tested as doctor won't do it but I do have slightly ellavated thyroid antibodies.

Thank you

Clutter profile image
Clutter in reply toKla88

Kla88,

There is scope to increase dose to raise FT4 and bring down TSH which should improve symptoms. The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.4 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email louise.roberts@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

NHS rarely tests FT3 now but you will need to know what your FT3 level is when you take NDT to ensure FT3 remains within range. thyroiduk.org.uk/tuk/testin...

If thyroid peroxidase antibodies are over range they positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

Kla88 profile image
Kla88

thank you for all the information you have been a great help to me. My doctor isn't willing to increase my dose. Even when my tsh was at 4.6 he wouldn't budge it just so happened it went over their so called range on my following blood test & that's why my meds where increased.

Clutter profile image
Clutter in reply toKla88

Kla88,

It's doctors like yours who keep patients undertreated who give Levothyroxine a bad name. Chances are you would feel fine if you were optimally dosed. If you are going to self medicate and order your own thyroid tests you don't need him but otherwise you should consider changing doctor.

Kla88 profile image
Kla88

He was the 4th one at the same practice, pretty much best of a bad bunch. I just don't feel they know an awful lot but pretend that they do. Thank you

Clutter profile image
Clutter in reply toKla88

Kla88,

If you want GP involvement with your thyroid you'd better change practice.

silverfox7 profile image
silverfox7

Better to try and see if you can sort things without T3 as when taking it you must get it tested to be safe so would need to configure the expense of private testing as well.

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