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Thyroid UK
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Help with medication please

Hi, for the past 15 years I have been diagnosed with Lupus and Hypothyroidism. I have suffered dreadful fatigue and still do. I decided to see a Lupus Specialist in London as I have always been told by my Consultant who deals with my thyroid problems that my fatigue is my Lupus and that my hypothyroidism is treated optimally with Levothyroxine and a small dosage of T3.

I went to appointment with the view to reluctantly discuss Lupus Medication that my Consultant suggested would benefit me only to be told I do no have Lupus after many more blood tests. It was suggested my fatigue was my hypothyroidism!!

Can anyone give me any advice as what to do? I have been taking levothyrixine for about 12 years and never feel any better. Constant fatigue, achy, dry skin etc...

Are there any private Endocrinologists anyone could recommend! Either London or Cambridge area would be good?

Thank you.

1 Reply

I am sorry you have been fobbed off re your constant fatigue.

Many people seem to be fine on levothyroxine but on this forum they appear not to recover as doctors expect.

If any members know of an Endocrinologist in the areas you suggest they will send you a Private Message as no information is permitted on the open forum.

If you want a private Endocrinologist, email louise.roberts@thyroiduk.org.uk and she doesn't return from holiday until 3rd August I believe.

You could get a private blood test from one of our recommended labs who do home pin-prick blood test (thyroid profile etc) and put them on a new post for comments from members.

Thyroid blood tests have to be taken at the very earliest, fasting (you can drink water) and allow a gap of 24 hours between your last dose and test and take afterwards.

You need a TSH, T4, T3, Free T4 and Free T3 and if you haven't had thyroid antibodies tested you could do that too. Or do the ones that you can afford and FT4 and FT3 are necessary and I'll give a link and you can read why.



Tick off the symptoms you have and I think you'll be surprised.


Many of our members source their own thyroid hormone replacements and treat themselves and have succeeded.


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