Brighton and Sussex and T3

[GosportNancy]

Just found this while googling T3 and thought members might find this interesting

bsuh.nhs.uk/wp-content/uplo...

I was prescribed T3 in hospital in Sussex last year and sent home with some....then had prescriptions refused.

[Hidden]

GosportNancy I think many will find the link interesting. I'm still on levo and was diagnosed with Hashi's in Jan, but concerned I may need the combo T4/T3 so I'm taking an active interest in this appalling situation. I hope you are able to self source T3.

What will happen next?

We are sending a letter to your GP about this. We will arrange for you to be seen in the endocrine clinic to discuss this and facilitate switching from T3 to levothyroxine. Unfortunately we will not be able to continue to prescribe T3 from the hospital.

What are my options if I want to continue T3 therapy?

(... and would that be because there is a benefit to using it??)The only option for patients wishing to continue T3 therapy is through the private sector: your GP will need to refer you to a private endocrinologist.

[GosportNancy in reply to Hidden]

This has been quite a journey for me. I was refused T3 back in late 2015 but managed to source some myself but then their stock ran out,

I had a few weeks left at home but when that ran out I collapsed at home. While the hospital staff were trying to find out what was wrong, I went into cardiac arrest and spent several days in ICU in a medically induced coma.

I was prescribed T3 in hospital but when I got home my GP refused to prescribe so I went back to buying my own.

Its been a year on and I have now decided to continue with private blood testing which shows normal level of T4 raised TSH and low T3.

I can't rely on T3 being available to buy so am researching natural ways to raise my T3

[Pookie50]

Thank you for posting this GosportNancy, if it is so bad for us why are they prepared to let us have it privately? It really is a disgrace. I have been taking T3 either as a combination of T4/T3 and now NDT plus a little extra T3 for 9 years without any of the stated problems. Have you thought of trying NDT?

[cwill in reply to Pookie50]

I worry that as T3 gets harder to source NDT will be the only option. Then we may have shortages of that too. I am feeling the need to stockpile....

[Dee1]

Thanks so much for this. It is good to have the reasoning behind the decision. I live in the Brighton area so very relevant to me as my prescription has been stopped. Thanks again.

[GosportNancy in reply to Dee1]

Glad to help. I had seen something like that before but not from the Brighton area. I am in Eastbourne so not far from where that is happening. I was prescribed T3 in March 2016 from Eastbourne hospital before that info was published.

[t3rr]

This is very worrying...also live within this trust, so anticipate receiving a similar notification, the big problem is what to do next!