I know for sure my brother had it and later died of Burkitts lymphoma at 36 and the two are known to be medically linked so it can do some serious damage for sure.
Anyone know of any academic research into the conexión between EBV and hypothyroidism?
The more I think about it the more feasible it seems, but is it backed up by hard evidence or is anyone collating such evidence?
Photo is of EBV by national Cancer Institute
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Firstly, I would like to say I respect we all have different opinions and ways of looking at life and this is just my opinion.
I followed the link and read the article. I then realised this man is a medium and has written a book and 'Spirit' has told him CFS is real and it is EPV.
Without knowing anything about this man and not wishing to research him I assume "Spirit" is his "guide".
Relating to CFS and hypothyroidism. I was diagnosed with CFS in 2005. I NEVER believed this as a diagnosis, for me it was simply undiagnosed/untreated hypothyroidism (due to their 'normal' TSH tests) and skewed vits/mins.
I have never had any evidence of EPV in me.
He says the medical communities do not know that EPV is behind it all but I am guessing he and "Sprit" do.
His last para says:
"If you have EBV, or suspect you do,take comfort. If you take the right steps—which medical communities don’t know about yet, but which are covered in my book—you can recover, rebuild your immune system, return to a normal state again, and regain control of your life."
I do believe he is praying on vulnerable people, desperate to help themselves, in order to sell his book. I do not buy into it I am afraid.
Personally, I would feel more confident if this 'discovery' that will heal us all had been made by the medical communities and not a medium and "Spirit". I have no idea if there are any academic articles or research studies regarding this.
As stated, this is just my opinion and this guy's 'diagnosis' may well work for some but not for me
Thank you for sharing and I am really sorry about your brother
ajs100uk Thanks for this helpful information about the person who is postulating this theory - not based on thorough research as I suspected. As soon as I see a link to something you have to buy to explain it all, I feel very uneasy.
The theory that viruses might be the trigger for many diseases does not seem at all absurd to me, but it needs to be backed up by proper research, not just trotted out as an incotravertable truth based on an inner voice.
His inner voice could be right, of course - all ideas have to come from within as a thought. But he has missed out the important bit - backing it up properly with good research evidence.
Only time will tell. If he is on to something.
Thanks re my brother his loss was completely devastating. The first thing I knew was when I got a call to say he had a week to live. He survived three months but it was an utterly heartbreaking decline and a very terrible demise. It was a long time ago so I am sanguine about it. All very tragic nevertheless especially for the Family left behind. At least he remains beautiful and forever young in my memory.
I saw Dr Peatfield many years ago, one of his questions to me was whether I had suffered from glandular fever which is caused by the Epstein Barr Virus. In his book 'Your Thyroid and how to keep it healthy" he mentions this, and the fact that in some cases the causative virus remains in the hormone producing tissue of the thyroid and progressively damages it. He goes on to say that in his clinic about 30% of his patients give a history of glandular fever before they became ill with their thyroid problem.
helvella you are right I misread Seaside Suzies post. I was racking my brains for Dr Skinners name (I blame hypothyroidism for my degeneration in memory!) but I could not remember it. For some strange reason I thought SS said Dr Peatfield was a viriologist. There is no hope for me my mind is a mess 🙄
I think that's what happened to me. I had some sort of real bad virus before everything started. Affected my throat. I couldn't eat I couldn't move my head for a week was bedridden. A week with no food. I was very hot but had the chills. I couldn't swallow without it hurting. I didn't have a cough or runny nose.
It's sort of the same with yersinia enterocolitica, lots of research points out it indeed is a trigger of hashimoto and some says never.
Well I have had YE which turned to chronic infection, nobody cared. Now I seem to have hypothyroidism. No one cares.
But it has been studied decades ago that chronic YE can cause hepatitis, multi organ failure, death or hypothyroidism. It usually happens in 8 years. Well I do not have hepatitis, multi organ failure and I think I am not dead. So what is left?
Still no one cares as traditionally YE causes reactive arthritis, which despite awful infection on my knee I never had. Was tested numerous of times. I had ridiculously high YE antibodies but nothing else found, had them for decade and still no one cares it was chronic and it is connected to conditions I mentioned above.
I am pretty sure there is a connection between many viral and bacterial infections. But the thing is that not everyone get thyroid issues, so we who have ,have that vulnerability in the beginning.
Justiina I am sorry to hear you have been plagued by that virus and it has caused you such unpleasant health conditions. I agree viruses must be a trigger but there has to be a vulnerability for them to get a hold. I think genetics must be involved in my case/family. I had genetic testing and was told the lymphoma (including thyroid lymphoma) had a hereditary aspect but there are no effective screening tests for it.
My brother had YE too and now he has Horton syndrome (cluster headache) , I don't know if Horton's is triggered by any virus, but my brother has elevated TSH, low vit D and high cholesterol, characteristic symptoms of hypo! He is also sensitive to gluten like me.
But he doesn't want to go to doctors as he is still upset how poorly his Horton's was diagnosed. My brother's eyes get swollen and runny nose and it was treated as sinusitis even though he was crying out of pain.
But his girlfriend has booked him private thyroid tests behind his back and paid for them
In my family we do have something going on as put of 22 cousins (my mom has 9 siblings) most of us have something RA, hypo, severe allergies, TOS syndrome etc.
My mom's mom was screened for rare genetic mutations early 80's. Those mutations only appear in Finland.
She did say she has other genetic mutations that can affect us grandchildren. But as she was a bit crazy , religious bad way, my mom and her siblings ignored it. Now we are trying to get a hold of those tests to find out what she was talking about. Maybe it was nothing, but I think there might be something that would explain why so many of us are ill when our parents are not!
I wish genetic testing was routinely done to see what vulnerabilities one has. I know you can do it privately but it costs a lot.
That is one heck of a cluster. One branch of my mothers family all went blind with glaucoma, hypothyroidism is common on my maternal side and lymphoma. A maternal cousin has narcolepsy another certainly looks hypothyroid. I don't even know my maternal relatives of any removal or if they also have autoimmune problems. My mother told me about the ones going blind.
Justiina i have a hyperthyroid. Sister who has some signs of it but I seem to be ok. I remember my mother told me one of her grandmothers always said she went blind as she looked st the sun. I bet she had glaucoma. I was issued with strict instructions by my mother to never ever look directly at the sun! I don't think I ever have either! 🌞
Oh sorry so easy to assume one is hypo as most are!
Well hyper ain't that much fun either I think.
It's a bit same than when kids were told not to watch TV in dark room as it would cause poor eyesight. I got my first glasses at age of 11 and was disheartened that I had been allowed to watch tv in dark. In reality it was just normal at that age and I grew out of it.
I hope your sister dodges the bullet , or maybe they would find a cure for glaucoma.
Me too and a second bout in my early 20's. I got arthritis/ankylosing spondylitis a few years after then tendinitis and a collection of low grade hypothyroid symptoms. Later on I had shingles on the optic nerve and eventually got diagnosed with overt hypothyroidism. I believe they have all played a part in the development of my condition, either directly or because my immune system was compromised. It will be a very interesting and exiting area of research in the future. Pity little attention is paid to it at present.
Epstein Barr Virus might well have all sorts of impacts.
However I flat out, absolutely, 100% do not believe in that "medium". The ability to pick up some strands of medical discussion and push them as THE ANSWER does nothing to verify his claimed abilities.
There is NO reason to believe that EBV is behind all cases. Bear in mind, one known other cause is tuberculosis of the thyroid.
Tuberculosis of thyroid is quite interesting as so many people do have latent tuberculosis even though never had it active.
My mom for example had tuberculosis at age of 10, had goitre later on. My granddad had tuberculosis at age 20 something and it capsuled in his lung and formed cancer at age 70 and spread to brain. My dad currently has latent tuberculosis and severe psoriasis. He is treated for tuberculosis and miraculously his voice got better. His dad died 1955 at age 50 and in autopsy 50 had several goiters. Don't know if there is connection.
My dad's doctor said that there are a lot of people walking around with latent tuberculosis which can activate any given day especially if immune system is compromised.
Many viruses are mentioned, not just EBV. Also they make the point that some exposure to viruses helps educate the immune system and too much sanitisation seems to increase the occurrence of autoimmune disorders. It can't be as simple as EBV causes every autoimmune disorder in everyone, everywhere all of the time.
Not fact, just my own belief, I suppose anything that puts your system under pressure or messes with your immune system meaning compromised would be enough to trigger any genetic flaws maybe. I think that's why so many women become first diagnosed with both diabeties and thyroid during pregnancy. Other more prevalent times seems to be those when hormones appear more unbalanced such as teens and menopause and also being very ill whether viral or bacterial which seems to around this time. I think this is why men don't get these problems as often as well as they don't tend to be pregnant or menopausal lol. This is just from what I've experienced - no idea if true, I just don't think I've met many people who didn't begin to have their autoimmune problems at one of these times although I'm sure there's some that have.
For me personally, it was definitely gluten. All the initial more minor health issues I had from age 6 were suddenly disappeared since being GF and these were there a good few years before thyroid symptoms which started during puberty or just after. However, issues like these, even if just minor immune disturbances that aren't so noticeable at first or not yet caused much damage might be enough to make these sorts of illnesses either more likely or more destructive possibly?? For example, I would already have inflammation, nutritional deficiencies etc so maybe illnesses can hit harder when not optimal already? I do think hormonal changes during life might affect immune system or gene triggering somehow though as well. I know the immune system is a little compromised during pregnancy????
Saggyuk the fact that women's endocrinology in operation is considerably more complex than men's to allow us to give birth, has to be the reason for us paying the price in health terms with things like hypothyroidism. My sister said some hormones can increase by 500% in pregnancy - quite incredible. I presume this puts a considerable strain on our endocrine systems. I lived in Africa for a few years and the men here said if childbirth had been something men had to do humanity would have died out long ago!!
There are men with hypothyroidism for sure - I know at least two. One because he was hyper and had RA. I think all endocrine disorders are becoming more prevalent. Perhaps they are better diagnosed (tho I had problems getting it recognised) may be it is all the modern chemicals we come into contact with upsetting our systems. Not sure what the stats are on increases over time.
Yep - i know many people (a few girlfriends too) who were very vulnerable to colds & flu etc, and their recovery was prolonged. These people had/have EPV from galndualr fever developing earlier in life. Also some of these people had herpes/cold sores. Also many fatigue symptoms. I think there are likely to be links between EPV and CFS. Although now that I have AF myself - I dont think that the EPV virus may always be required to develop CFS from AF.
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