So I've my colonoscopy results 😬: They have... - Thyroid UK

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So I've my colonoscopy results 😬

Zuzka1 profile image
Zuzka1
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They have found that I have Collanegous Colitis. They are going to treat me with Entocort for 3 months.

I am on one tablet of Euthyral a day which I take around 7am.

How do I fit this Entocort in?

Has anyone got this condition? She said she thinks it's also a autoimmune problem 😒

Thank you everyone x

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Zuzka1
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Clutter profile image
Clutter

Zuzka,

Apparently there are no drug interactions between Entocort + Levothyroxine so take them 4 hours apart.

drugs.com/drug-interactions...

Some members have said that steroids suppress their TSH so if you have any thyroid tests you may want to mention this to your endo to avoid any dose reductions.

Zuzka1 profile image
Zuzka1 in reply to Clutter

OK thank you @clutter

So if I take it 4 hours after....how on earth do I got all my supplements in in a day? There's not enough 4 hours in between.

What do others do?

Clutter profile image
Clutter in reply to Zuzka1

Zuzka1,

Take the Entocort 4 hours away from Levothyroxine.

Most supplements can be taken 2 hours away from Levothyroxine. Exceptions are calcium, iron, vitamin D, magnesium and oestrogen which should be taken 4 hours away from Levothyroxine. Some of your supplements can be taken together with food.

Zuzka1 profile image
Zuzka1 in reply to Clutter

Thank you.

So if I do this:

Enthyrall at 7am

Entocort at 11am

B12 and B complex at 3pm

Drop selineim and zinc?

Then at bedtime take my iron and Vit C?

Clutter profile image
Clutter in reply to Zuzka1

Zuzka1,

Why not take selenium and zinc with B12 and B Complex?

Zuzka1 profile image
Zuzka1 in reply to Clutter

Ohhh can I take them all together??

Clutter profile image
Clutter in reply to Zuzka1

Zuzka1,

Sure, take them with food as you are having gut issues.

Zuzka1 profile image
Zuzka1 in reply to Clutter

Oh I'm such a chump I had no idea! Thank you 😊

jimh111 profile image
jimh111

I had collagenous colitis for a while which was treated with budesonide. I found Budenofalk better than Entocort because although they are both enteric coated Entocort is slow release and more targetted to Chrohn's. The Budenofalk is released more in the middle section of the gut which is where collagenous colitis tends to strike. This is a minor point, I just found I had some minor gut pain on Entocort when on the higher dose (three capsules daily). You will know if the treatment is working in a week or two. I don't think it is an autoimmune problem, it tends to strike when the gut is challenged in someone who is susceptible. In my case I was on long term antibiotics for a chest infection followed by NSAIDS for an attack of sciatic pain. The antibiotics clearly upset the gut flora and the NSAIDS were then able to irritate my gut more than usual.

Zuzka1 profile image
Zuzka1 in reply to jimh111

Thznx Jimh11

Did your symptoms inc bloating?

jimh111 profile image
jimh111 in reply to Zuzka1

No, that could be IBS.

Zuzka1 profile image
Zuzka1 in reply to jimh111

I have severe bloating ☹️

jimh111 profile image
jimh111 in reply to Zuzka1

Forgot to say that diarrhoea causes loss of electrolytes and magnesium deficiency can lead to bloating. I would try magnesium citrate, it will take a few months to restore your magnesium levels.

Zuzka1 profile image
Zuzka1 in reply to jimh111

When I took Citrate it literally was like a sleeping drug to me. I only took it once and it wiped me out the next day...should I try again?

jimh111 profile image
jimh111 in reply to Zuzka1

I think this was a coincidence, it's only a mineral. You will need to try magnesium citrate for about three months to make sure you are replete.

Saggyuk profile image
Saggyuk in reply to Zuzka1

It is supposed to have a calming effect so take in evening/at night. I also couldn't take it for some reason

Saggyuk profile image
Saggyuk in reply to Zuzka1

If you have severe bloating it might be worth seeing if any foods makes this worse. Many of us find a gluten free diet helps more than other things though :-)

Zuzka1 profile image
Zuzka1 in reply to Saggyuk

I was actually going to write another post asking if everyone with hashimotos is GF. Is it just the bloating that helps?

Saggyuk profile image
Saggyuk in reply to Zuzka1

I can't say for everyone but in my case it helped everything - my other autoimmune stuff, a sleep disorder, nutritional deficiencies, fatigue and aches and blisters and so on. The NHS have had to diagnose me with NCGS as there was too much proof even though I test negative for coeliacs but they don't like giving this diagnosis.

It's worth a try, not much to lose but might feel better and you can always go back to eating it after if nothing changes.

maggykriti profile image
maggykriti

Hi, I have lymphocytic colitis which is another microscopic colitis. I take mesalazine which seems to suit me better than the steroids I was initially prescribed. Microscopic colitis is no fun and it does seem that autoimmune diseases like these flock together with thyroid disease. I have no thyroid after a total thyroidectomy in 2002 and I don’t find a problem taking mesalazine with NDT and T3. The thing I found worked for me was cutting out gluten completely on my GP's suggestion, I know now that coeliac disease is very closely associated with lymphocytic colitis. I hope you find a way to control those awful symptoms, thyroid disease is bad enough!

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