I have had thyroid eye disease for about 6 months. I have only seen my Doctor and as yet neither Endocrinologist or Ophthalmologist. My latest bloods showed cutting Carbimazole from 40mg down to 20mg did not work, on 40mg for 4 weeks I came down to 6.7 T4 then they reduced me to 20mg and went from 6.7 to 28! However in meantime I have started Levothyroxine 100mg daily!, so you can imagine after 4 doses of that what my levels will be. yesterday had a bone scan and a few weeks ago had a thyroid scan. next week see my Endo for 1st time. I feel the whole way it has gone is a complete bodge of an amateurish way.
I asked to be referred for a eye specialist who is not available for 6 weeks! So I asked what would happen if went private for 1st appointment then switched back to Nhs for prescription, my Doctor said an appointment can happen quite quickly and once they recommend drugs they will prescribe them!
This is like a living hell and need some quality care asap. 3 months of meds and I feel like I am back to step 1. Ok I know Doctors don't see many Overactive thyroids but basic things like heart rate should be monitored not be left to me to say is it normal to live in mid 90's to 120's everyday, for them to realise they have never checked it and give me propranolol straight away.