Dosage decreased.: My dosage was upped to 225 in... - Thyroid UK

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Dosage decreased.

ymr2310 profile image
6 Replies

My dosage was upped to 225 in Feb. Apart from erratic periods which have settled down now I've felt great. Now the dosage has been decreased again to 200. Is it worth talking to my go??

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ymr2310 profile image
ymr2310
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6 Replies
shaws profile image
shawsAdministrator

Yes, if your dose is not 1 or under, he shouldn't have decreased your dose. We feel best when TSH is 1 or lower and some need it to be suppressed. The doctors are unskilled when it comes to dysfunctions of the thyroid gland all they know is not for the TSH to be too low which keeps many very unwell. They also believe untruths about us developing heart disease due to low TSH. Why rumours abound I don't know but they are untrue.

You can email louise.warvill@thyroiduk.org.uk and ask for a copy of the Pulse Online article by Dr Toft and highlight where Dr Toft suggests a TSH below 1 as he was President of the BTA.

thyroiduk.org.uk/tuk/testin...

ymr2310 profile image
ymr2310 in reply to shaws

Thanks so much. I've been under active for 14 years. Never seen anyone other than my gp. It gets frustrating...

shaws profile image
shawsAdministrator in reply to ymr2310

Most of our members have given up on the medical profession due to either remaining undiagnosed due to the TSH, or not being prescribed enough replacement hormones so they treat themselves otherwise their lives are a misery.

Doctors knowledge of dysfunctions of the thyroid gland do not include clinical symptoms so they just look at the TSH and if it is in range they say we don't have a problem.

shaws profile image
shawsAdministrator

Inform him that your dose shouldn't be adjusted due to the TSH alone. Our TSH can be below 1 and some need it to be suppressed. If he is insistant ask him for a Free T4 and Free T3 blood test which will inform you of:- read about FT4 and FT3 in this link:-

thyroiduk.org.uk/tuk/testin...

thyroiduk.org.uk/tuk/thyroi...

radd profile image
radd

ymr,

It is common for doctors to reduce a patients Levothyroxine dose when basing on the TSH result which has a too broader range for many.

If you post recent thyroid hormone test results complete with ranges (numbers in brackets) members will comment, as many people with hypothyroidism require a low TSH and middle to high range T4 & T3 results (when medicating Levothyroxine)..

You have a right to see your medical records under the Data Protection Act 1998. Guidance on The Data Protection Act 1998 can be found at:

ico.org.uk/for-the-public/p...

Accessing your medical records

thyroiduk.org.uk/tuk/NHS_In...

ymr2310 profile image
ymr2310

Thanks for your info. I'll be contacting my gp tomorrow to get my test results. I'll post them then.

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