Thank you so much but more help needed moving forward, please

I cannot thank the people on this forum enough. A few months ago I was told by my endo that I should not take T3 anymore as I was likely to have a heart attack. I was devastated and turned to this forum for help. The information and the reassurance I received gave me the confidence to take charge of my thyroid condition. My previous desperation turned to confidence that I could manage things for myself and I started reading the posts on this forum and decided to make a small change and start taking my meds at night time. The difference to me has been amazing and at last I have some energy. This weekend I spent with friends and I was able to party (and enjoy myself) for the first time in many years and stayed up until 2.30am and until 12.30am the next night, something I could not have contemplated a few months ago! On Monday my muscles were so sore and tight I could hardly move but I was happier than I had been for a long time. So I am wondering now how to move forward? Should I do the Blue Horizon Thyroid test plus 15? Although really expensive I wondered if it would give me a useful profile of everything as a base? There just seem to be so many things to test for and so many aspects for example does it matter if the test is for NOT ACTIVE B12? Should I test for thyroid antibodies?

Thank you again so much to everyone for giving there time and for sharing it has helped me more than I thought possible.

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6 Replies

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  • So should we be taking our thyroxine at night?

  • Well it has certainly made a huge difference to me Bunnyjones. :) I take both Levothyroxine and Liothyronine I believe some people take Thyroxine in the morning and T3 at night as well.

  • Just remember to miss the night dose if you are having a blood test next morning and take it afterwards and night dose as usual.

  • Bj,

    You can take your thyroxine in the morning or at night .... whichever suits you better. Some have a preference due to how they feel or just convenience but however you take it, it must be on an empty stomach with a glass of water, 1 hour before food, 2 hours before supplements and 4 hours before calcium, iron or vit D supplements.

  • twa,

    Great news you are feeling so much better and of course the better you feel the more able you are to take control of your life and well being.

    The more things you test, the more info you gain about your deficiencies, etc and most test what they suspect to be a problem. Thyroid antibodies levels are useful to know as can be the cause of huge inflammation and gut issues. Iron, Vit B12, folate and Vit D are useful tests as levels are commonly low in people with years of low thyroid hormone.

    Active Vit B12 is not essential unless you are experiencing neurological problems and suspect you are not utilising high levels of Vit B12 in the blood stream.

    It is prudent to complete these basic tests and then supplement accordingly, proceeding with further investigation when health progression plateaus again. It is worth noting that supplementing can skew any further testing but still give important pointers to levels.

  • Thank you so much radd this is really helpful information.

    I am thinking to aim for a full range of tests to start with so that this can then be the base for the future as I have not taken any supplements for a long time and I have been hypothyroid for over 20years. However, I do note what you say about supplementing skewing any further tests.

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