Some days................

[Snoddyoddbod]

I know there are people worse off than me and living with terrible disabilities but some days I hate what's Graves has done to me.

What did I do to deserve it??

So here I sit eating brunch tears rolling down my face.

I truly hate it !!!

Sorry

[Kitti1]

Oh Snoddyoddbod I'm so sorry your feeling so bad. My clueless gp wrongly lowered my levo recently, long story won't bore you. Without consultation 😤. My head is that fuzzy that when out walking the dogs earlier, bumped into another dog walker we know n chatted. Well I made an embarrassing attempt at chatting. I couldn't get my words out at all, semi made no sense. It was so embarrassing 😕 She must have thought I was badly hungover or worse ? I felt like i wanted the ground to swallow me up 😞

I'm going to string my gp up when he's back off yet another holiday, probably at the expense of big pharma !

Hope your feeling better soon

[Snoddyoddbod in reply to Kitti1]

Hi Kitti1

Oh I know that feeling so well. I find my brain is in gear but the wiring to my mouth has left the building because what falls out it's prattle!!

Let us know how you get on with your gp.

Thank you for your reply

[Raventhorpe]

Hi snoddyoddbod so sorry your having a bad day, guess we all feel like this at times, hopefully tomorrow will be a better day, sending you hugs from a fellow sufferer of the dreaded graves desease xx

[Snoddyoddbod in reply to Raventhorpe]

Thank you. It really is just the odd day.

Since I have found this forum I feel a lot better. I no longer feel isolated x

[SlowDragon Administrator]

Can I make a practical suggestion that you get a full Thyroid & vitamin test done privately

The most popular choice on here is from Medichecks or Blue Horizon - £99 (they both often do money off offers -sign up for emails)

Either DIY finger prick test, or option to get private blood draw at local-to-you clinic

When you do blood test should be as early as possible, fasting & no Levo in 24 hours prior (take straight after)

Once you have results post them on here & members can advise.

[Snoddyoddbod in reply to SlowDragon]

Hi slowdragon

Thank you for your reply

Managed to push my gp into doing full set of bloods but not the T3. It's irrelevant apparently. I've ordered the T3 kit thru medichecks so between the two I shall have a full set of results!!

[Gretna99]

Don't be sorry. I've been crying all week as I've just been diagnosed with Graves. I hate it too. I've felt terrible for over a year and got diagnosed on Monday (by letter!). I'm currently looking at having a private thyroidectomy (paying myself) as I've read that this lessons the chances of eye issues which I don't have right now but can't stop thinking about it developing.

There's a clinical trial happening right now as they think they may have found a cure for Graves. Let's hope the treatment is approved and soon!

I'm here for you, you can moan and shout at me anytime. I understand x

[Snoddyoddbod in reply to Gretna99]

It's a tough disease to get to grips with but since finding the forum I'm getting my head around it better. I've had mine since 2013 and it's truly crap and still gets me down. Like today, no reason why, it just gets to me.

Before you do anything get the views of the kind people here and make a list of the pros and cons of all treatments.

I have had RAI treatment and really wish I had looked into it properly If I had looked into it, I probably wouldn't have had it done

Thank you for your lovely message tho x

[Dreamer12]

Hi snoddyoddbod

I hope you are feeling better now , it's hard some days but lots of folk on here understand how you feel.. take good care of yourself 😀Xx

[Snoddyoddbod in reply to Dreamer12]

Hi dreamer

Thank you, yes feeling better. As fast as the feeling appear it's disappears

I humour my way thru most day but every so often the feeling of despair creeps up and bites hard For not apparent reason.

It's the lovely people on here that are getting me thru. An absolute god send, every one.

Thank you for your message xx

[Dreamer12 in reply to Snoddyoddbod]

Hi Snoddyoddbod

Aww that's good you are feeling a bit better.. yes it's a great forum and nice to meet folks in the same boat. Take care Jane xxxx

[Namaste12]

I know exactly how you feel. Graves disease is a nasty visitor who robs you of your ability to enjoy what you used to do, because you can't do it anymore. You've done nothing to deserve it. I know it's not easy, but try to love yourself right now, just the way you are. Graves has visited me the second time in my life, & right now I weigh 47kg, my eyelids are swollen & I cannot work. But I never give up. Trust that " this too will pass", and allow yourself to cry if you feel like it. Best wishes & love to you!